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Education News Opinion

Known unknowns, and as yet medically unexplained diseases

Doctors with M.E. Honorary Fellow, Dr. David Strain, published the following well-received article on 12th May 2022, as part of the British Medical Association’s recognistion of World ME Awareness Day. It’s the first global awareness day for ME – myalgic encephalomyelitis, or chronic fatigue syndrome – and time to acknowledge medicine still has a lot…Continue readingKnown unknowns, and as yet medically unexplained diseases

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News

Doctors with M.E. Honorary Fellow to attend Buckingham Palace Garden Party

We are delighted to announce that Doctors with M.E. Honorary Fellow Dr. William Weir and DwME Associate Mrs. Linda Campbell will be attending the Queen’s Garden Party at Buckingham Palace on the 25th May 2022 to receive the Queen’s Award for Voluntary Service on behalf of partner organisation Hope 4 ME & Fibro Northern Ireland.…Continue readingDoctors with M.E. Honorary Fellow to attend Buckingham Palace Garden Party

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Education Expert Resources Research Commentaries

ME/CFS Clinical Tool – Measuring Family Quality of Life Impact

Striking evidence for how to improve standards of holistic care and service provision The FROM-16 validated quality of life tool is a pragmatic addition to the frontline clinical toolbox, allowing for holistic decision making to be made regarding care and broader service provision. Doctors with M.E. Director Dr. Nina Muirhead presents new findings with her…Continue readingME/CFS Clinical Tool – Measuring Family Quality of Life Impact

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Compliance Education Learning Resources and CPD ME/CFS Guidelines News Policy Positions Press Releases

ME/CFS: What Psychiatrists need to know

Psychiatry and Psychology Working GroupDr Crowder BSc (hons) MB ChB FRANZCP, Associate, DwMEYochai Re’em, M.D., Associate, DwME | Website | Twitter What is ME/CFS? ME/CFS is a chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children, and all social classes. About 75% of sufferers are female. It has…Continue readingME/CFS: What Psychiatrists need to know

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Books Education Opinion Patient Perspective

Getting compliant with NICE guideline – the patient experience requirement

Section 1.16 of the NICE ME/CFS Guideline requires that health and social care providers ensure that all staff delivering care to people with ME/CFS have an understanding of the patient experience. Doctors with M.E. asked the CFS/ME Research Collaborative Patient Advisory Group (CMRC PAG) what patients make of the new NICE guideline. They shared the…Continue readingGetting compliant with NICE guideline – the patient experience requirement

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Education Opinion Patient Perspective

What does good practice look like? Patients chip in

When faced with a life changing, devastating chronic illness with no cure in a young person, doctors often don’t know what to do. Doctors with M.E. has produced guidance for GPs, but what do patients want? We asked patients to share examples of when doctors got it right. It is heartening to read this collection…Continue readingWhat does good practice look like? Patients chip in

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Education Expert Resources

Bateman Horne Center: Educational Web Page on ME/CFS

The Bateman Horne Center (BHC) is an international center of excellence dedicated to advancing the diagnosis and treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), and other related conditions. Its educational page on ME/CFS features BHC Medical Director and Doctors with M.E. Honorary Fellow Dr. Lucinda Bateman, with videos that take viewers through the…Continue readingBateman Horne Center: Educational Web Page on ME/CFS

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Education News

Facilitators to better ME Care

It is widely acknowledged that barriers to good care for ME/CFS patients exist due to the lack of biomarker, disease specific treatments and poor medical education about this disease. There is also inherent cultural bias against invisible illness and illnesses affecting predominantly women.  We sought the opinions of 656 volunteers who took the time and…Continue readingFacilitators to better ME Care

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Education Learning Resources and CPD News Patient Perspective

Myalgic Encephalomyelitis: Northern Ireland Educational Webinar Series

We are pleased to announce that the M.E. (Myalgic Encephalomyelitis) Educational Webinar Series organised by partner organisation Hope 4 ME & Fibro Northern Ireland and hosted by the Health and Social Care Clinical Education Centre of Northern Ireland is now available for public viewing. Featuring experts and speakers from Hope 4 ME & Fibro N.I.,…Continue readingMyalgic Encephalomyelitis: Northern Ireland Educational Webinar Series

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Education Learning Resources and CPD ME/CFS Guidelines News Policy Positions Press Releases

Putting it into Practice: What NICE ME/CFS means for GPs

Contents Overview Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children and all social classes. About 75% of sufferers are female. It has a worse quality of life score than many other serious illnesses including cancer,…Continue readingPutting it into Practice: What NICE ME/CFS means for GPs