Categories
Education Education/CPD Material News Policy Positions Press Releases

Putting it into Practice: What NICE ME/CFS means for GPs

Contents Overview Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a chronic, complex, multi-system organic illness with often devastating consequences. It can affect different aspects of life for both people with ME/CFS and their families and carers, including work and education, activities of daily living, family life, social life and emotional wellbeing.…Continue readingPutting it into Practice: What NICE ME/CFS means for GPs

Categories
Education News Opinion Policy Positions Press Releases

ME/CFS: The urgent need for improved generalist medical education

Doctors are currently underprepared for care of patients with Myalgic Encephalomyelitis (ME/CFS) and medical education in this area is deficient.  ME/CFS is a complex, chronic multi-system condition which affects at least 250,000 people in the UK, and frequently develops following a viral infection.(1)(2)  Importantly, a growing number of people living with chronic disease following Covid-19…Continue readingME/CFS: The urgent need for improved generalist medical education

Categories
Compliance Education Education/CPD Material News Policy Positions Press Releases

Health Education England removes Long Covid video after scientific evidence supports complaints

Professor Trudie Chalder of King’s College London, co-author of widely debunked PACE trial and Director of the Persistent Physical Symptom Service at South London and Maudsley NHS Trust, gives dangerous advice, ignorant of pertinent clinical knowledge, and presents trial findings in a misleading manner in a webinar on Long Covid that is now removed from…Continue readingHealth Education England removes Long Covid video after scientific evidence supports complaints

Categories
Education News Opinion

A doctor who doesn’t believe she is ill

The newly published 2021 NICE guideline on ME/CFS calls for a change in culture, from one of stigma and disbelief to one which listens to the patient. Doctors with M.E. starts by listening to one patient’s story. Dr. Hng collapses at work and still doesn’t know she is ill. She doesn’t call for help. She…Continue readingA doctor who doesn’t believe she is ill

Categories
Compliance Education News Policy Positions Press Releases

NICE 2021: A Triumph of Science over Discrimination

Doctors with M.E. stands ready to work with partners and organisations to bring medical education up-to-date and assist in developing the right services for ME/CFS patients. “The new guideline represents a positive and total paradigm change, uniting around the science, official disease classification and medico-legal compliance implications.” “This translation of scientific knowledge into clinical practice…Continue readingNICE 2021: A Triumph of Science over Discrimination

Categories
Education News Policy Positions Research Commentaries

Mayo Clinic: ME/CFS Essentials of Diagnosis and Management Consensus Statement

This comprehensive article, co-authored by Doctors With M.E. Honorary Fellows, Dr. Lucinda Bateman and Professor Anthony Komaroff, summarises best clinical practice recommendations for generalist and specialist health care providers treating adults affected by ME/CFS. The article covers epidemiology, prognosis, etiology and pathophysiology, diagnostic approach with new diagnostic criteria, and management of ME/CFS. The clinicians behind…Continue readingMayo Clinic: ME/CFS Essentials of Diagnosis and Management Consensus Statement

Categories
Compliance News Policy Positions Press Releases

Public Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’

A call for change in the face of long-standing regulatory failure The following public communication from our Governance Board regards the opportunity for a new “Medical Regulatory Agency”, ready for the post-brexit and the machine learning digital eras.  The letter also contains background pertaining to long-standing regulatory failure, unlawful medical norms, contra-scientific medical belief systems and…Continue readingPublic Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’

Categories
Education Education/CPD Material

CPD Module 1hr – Case Studies on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

A free online CPD module by Doctors with M.E. Director Dr Nina Muirhead is now available. The module is composed of 10 clinical cases that will challenge and improve your clinical knowledge and patient management for ME/CFS. This CPD module is endorsed by all major charities globally, with additional funding for distribution by the Scottish…Continue readingCPD Module 1hr – Case Studies on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

Categories
Compliance

Obligation to not mislead or evade diagnosis and to provide sufficient detail (FND, MUS, PPS, ‘dysregulation model’ and Long Covid examples)

Risk generation and unnecessary liability accumulation is commonly exacerbated by low and/or prejudicial standards of communication and/or record keeping in ME/CFS and other post-viral disease contexts. False record taking is commonly experienced in this field. Beyond the statutory contexts, the frequent frontline status quo regularly breaches a range of associated General Medical Council (GMC) and…Continue readingObligation to not mislead or evade diagnosis and to provide sufficient detail (FND, MUS, PPS, ‘dysregulation model’ and Long Covid examples)

Categories
News Policy Positions

Position Statement: 2021 NICE Guideline Update

On the 10th of November 2020, the National Institute for Health and Care Excellence (NICE) published its draft updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). NICE has updated its 2007 recommendations on the use of psycho-behavioural treatments for ME/CFS, concluding that Graded Exercise Therapy (GET) should no…Continue readingPosition Statement: 2021 NICE Guideline Update