To improve patient outcomes worldwide by empowering medics, scientists and policymakers with up-to-date practices and scientific rigour, fostering collaboration between professionals, the industries they serve, patients and the public.
Our vision
We build a future where every surgery, hospital, agency, insurance provider and employer is enabled with accurate information that supports their patients, clients, shareholders and wider stakeholders.
Global footprint
Harvard University
University of Edinburgh
University of Oxford
Columbia University
DePaul University
UK NHS
London School of Hygiene and Tropical Medicine
Stanford University
British Medical Association
Who we are
Doctors with M.E. is the global professional association of medical practitioners, scientists and researchers in the field, bringing together leading experts and the pre-pandemic quarter of a million healthcare professionals with ME.
Doctors with M.E. empowers medics, scientists, industry and policymakers with evidence based practices and scientific rigour, distributing regionally produced content to a global audience as the umbrella body representing our professions.
Myalgic encephalomyelitis is a complex, chronic, multi-system physical disease which causes unusually severe disability and can affect people of any age or demographic, including children. ME is often referred to by the problematic legacy term “chronic fatigue syndrome” or ME/CFS.
The Doctors with M.E. Code is composed of our Code of Ethics and Conduct and our Application Policy, pursuant to our obligations under statute and wider professional standards.
Bringing the state of the art to ME/CFS medical practice, research and policy
ME is one of the great public health challenges of our age. Unusually disabling, misunderstood and maligned. The evidence is that both diagnosis and management are too often driven by lack of medical knowledge and misconceptions
Key stats
30m
individual cases globally (pre pandemic)
Long Covid prevalence rates that meet ME diagnostic criteria are not yet quantified
250k
healthcare worker cases globally (pre pandemic)
Long Covid prevalence rates that meet ME diagnostic criteria are not yet quantified
9000+
article assessment corroborating regulatory failure of medical norms
US Institute of Medicine assessment of ME systemic exertion intolerance
100%
regulatory failure of medical norms
BPS papers ranked 87% very low quality, 13% low quality in UK NICE assessment
Join DwME
Make a difference by joining a group of experts that is growing worldwide. Drive best practice and scientific rigour in this field and join with colleagues from across the globe. Achieve professional impact in a field with unusual opportunity.
Medical Education Working Group DIAGNOSIS AND SYMPTOMS ME/CFS is… A chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children and all socioeconomic groups. About 75% of sufferers are female. It can affect all aspects of life for people with ME/CFS as well as their families and carers, and…
Doctors with M.E. proposes a simple solution to ensure success of the UK’s ME/CFS Delivery Plan. Following the then Secretary of State for Health and Social Care Sajid Javid’s announcement of a cross-nation delivery plan for ME/CFS, work has been underway at the Department of Health and Social Care to identify issues and find solutions.…
Replacing Working Group Glass Ceilings with Enforceable Minimal Standards (clickable video chapters below and on YouTube site) Further to our recent statement regarding major UK announcements, the above presentation provides the solution to concerns about new DHSC ME/CFS Delivery Planning mechanisms and final implementation. Current glass ceilings will limit success of this new process and…
Doctors with M.E Director and colleagues respond regarding the ignored importance of unpaid carers Doctors with M.E. Director, Dr. Nina Muirhead, has co-authored a BMJ Rapid Response regarding the topic of unpaid carers of people with ME. This important factor is largely ignored by the 2021 NICE ME/CFS Guidelines, the recent APPG report and the…
Doctors with M.E. warmly welcomes the UK Secretary of State for Health and Social Care’s recent inauguration of cross-nation delivery planning processes with his Chief Scientific Officer, Professor Lucy Chappell. Sajid Javid’s intervention on social media in the case of Maeve O’Neill was strikingly poignant, touching the hearts of many patients, carers and medics. We…
Doctors with M.E. Honorary Fellow, Dr. David Strain, published the following well-received article on 12th May 2022, as part of the British Medical Association’s recognition of World ME Awareness Day. It’s the first global awareness day for ME – myalgic encephalomyelitis, or chronic fatigue syndrome – and time to acknowledge medicine still has a lot…
We are delighted to announce that Doctors with M.E. Honorary Fellow Dr. William Weir and DwME Associate Mrs. Linda Campbell will be attending the Queen’s Garden Party at Buckingham Palace on the 25th May 2022 to receive the Queen’s Award for Voluntary Service on behalf of partner organisation Hope 4 ME & Fibro Northern Ireland.…
Striking evidence for how to improve standards of holistic care and service provision The FROM-16 validated quality of life tool is a pragmatic addition to the frontline clinical toolbox, allowing for holistic decision making to be made regarding care and broader service provision. Doctors with M.E. Director Dr. Nina Muirhead presents new findings with her…
Education, Collaboration and Policy Planning Initiative Following a generous private grant of resources targeted specifically at Project Florence, we are proud to publicly announce the initiative, which is now moving into a test phase following pandemic driven delays. Doctors with M.E. Registrants and Strategic Partners will benefit from a new digital platform that unifies education…
An Audit of UK Hospital Doctors’ Knowledge and Experience of Myalgic Encephalomyelitis Doctors with M.E. Founder and Director Dr. KN Hng, Director Dr. Keith Geraghty and Honorary Fellow Prof. Derek Pheby report their findings regarding ME/CFS knowledge and understanding amongst the medical community following an audit of hospital doctors at a training event in the…
“…this condition has been so mismanaged throughout medicine. What’s the sociology behind this? How did we remain ignorant for so long?”
Dr. Steve Olson, Kaiser Permanente, Director, Northern California Region
“We are listening to legitimate questions and concerns about science.”
Professor Chris Ponting, Geneticist, University of Edinburgh
“I split my clinical time between two illnesses and I can tell you, if I had to choose between the two illnesses, I would rather have H.I.V.”
Professor Nancy Klimas, Physician, Institute for Neuro-Immune Medicine
“…it is already now time for the medical profession as well as the whole society to repent.”
Professor Ola Didrik Saugstad, WHO Advisor
“People become traumatized by debilitating ME and then become traumatized again by the reaction to them by people who don’t understand.”
Professor Leonard Jason, Director of Center for Community Research
“…there is no question that there are a considerable number of individuals who have a post-viral syndrome highly suggestive of myalgic encephalomyelitis and chronic fatigue syndrome, this is something we really need to seriously look at.”
Dr. Anthony Fauci, Director, NAID, US NIH, on Long Covid
“ME/CFS is a biological illness, not a psychologic disorder. Patients with ME/CFS are neither malingering nor seeking secondary gain”