Doctors with M.E.

The global professional association for medical practitioners, scientists and researchers in the field of myalgic encephalomyelitis.

The leading international experts in the field of post-viral disease and related conditions.

Our mission

To improve patient outcomes worldwide by empowering medics, scientists and policymakers with up-to-date practices and scientific rigour, fostering collaboration between professionals, the industries they serve, patients and the public.

Our vision

We build a future where every surgery, hospital, agency, insurance provider and employer is enabled with accurate information that supports their patients, clients, shareholders and wider stakeholders.

Global footprint

laboratory, analysis, chemistry

Who we are

Doctors with M.E. is the global professional association of medical practitioners, scientists and researchers in the field, bringing together leading experts and the pre-pandemic quarter of a million healthcare professionals with ME.

What we do

Doctors with M.E. empowers medics, scientists, industry and policymakers with evidence based practices and scientific rigour, distributing regionally produced content to a global audience as the umbrella body representing our professions.

What is ME?

Myalgic encephalomyelitis is a complex, chronic, multi-system physical disease which causes unusually severe disability and can affect people of any age or demographic, including children. ME is often referred to by the problematic legacy term “chronic fatigue syndrome” or ME/CFS.

Our code

The Doctors with M.E. Code is composed of our Code of Ethics and Conduct and our Application Policy, pursuant to our obligations under statute and wider professional standards.

Bringing the state of the art to ME/CFS medical practice, research and policy

ME is one of the great public health challenges of our age. Unusually disabling, misunderstood and maligned. The evidence is that both diagnosis and management are too often driven by lack of medical knowledge and misconceptions

Key stats

30m

individual cases globally (pre pandemic)


Long Covid prevalence rates that meet ME diagnostic criteria are not yet quantified

250k

healthcare worker cases globally (pre pandemic)


Long Covid prevalence rates that meet ME diagnostic criteria are not yet quantified

9000+

article assessment corroborating regulatory failure of medical norms


US Institute of Medicine assessment of ME systemic exertion intolerance

100%

regulatory failure of medical norms


BPS papers ranked 87% very low quality, 13% low quality in UK NICE assessment

Join DwME

Make a difference by joining a group of experts that is growing worldwide. Drive best practice and scientific rigour in this field and join with colleagues from across the globe. Achieve professional impact in a field with unusual opportunity.

Cyber security alert for research, medical and allied communities working on ME or Long Covid

We strongly advise immediate and ongoing action to secure against live cyber security risks to members of the ME and Long Covid (PASC) research, medical and allied communities. We outline the minimum counter measures that we recommend. This is further to cyber security events that are outlined below, which have been reported to cyber crime…

opened notebook and silver pen on desk

DwME Honorary Fellow responds to RCP post

Doctors with M.E. Honorary Fellow, Professor Derek Pheby, has responded to Dr. Nina Muirhead’s article for the Royal College of Physicians, following up her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for Long COVID patients. In particular, Dr. Muirhead discusses the recent surge…

man woman technology work

Royal College of Physicians and DwME on the ME/CFS interest surge

Doctors with M.E. Director, Dr. Nina Muirhead, has written for the Royal College of Physicians in a follow up to her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for Long COVID patients. In particular, Dr. Muirhead discusses the recent surge in clinical interest…

DwME joins call for NICE to maintain scientific process

Further to our position statement on the 2021 NICE guideline update, Doctors with M.E. has joined the call for NICE to ensure that unconsulted changes are not injected, as these would avoid scrutiny by the scientific community. DwME considers the 2021 NICE guideline to be a watershed moment in the history of ME/CFS medical care…

Mass infection is not an option: we must do more to protect our young

Doctors with M.E. have signed a letter led by epidemiologist Dr. Deepti Gurdasani in The Lancet, warning of grave concerns and consequences from recent UK government announcements. In particular, Doctors with M.E. are extremely concerned regarding the known risks to children from long covid. This letter follows the John Snow Memorandum in The Lancet warning…

Stigma and causal attribution – new research

Causal attributions and perceived stigma for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Doctors with M.E. Honorary Fellow, Professor Leonard Jason, continues his scholarship in the field of ME with his coauthorship of a newly published paper examining the role of stigma and its impact on health-related and social outcomes. In addition to ME’s extremely low…

Honorary Fellows and DwME leadership cited – medical profession moves towards belief and support

Doctors with M.E. Honorary Fellows and Leadership were quoted extensively in a recent article article about post-viral disease by Christina Frangou. Published in the Guardian, the article has been well received by experts in the field and is entitled“‘I felt betrayed’: how Covid research could help patients living with chronic fatigue syndrome.“ Research into long Covid is…

Statement: Countess of Mar on Doctors with M.E.

In the 25 years that I have been working with people with ME the one wish that unites them all is that they should be listened to and believed. At last, the tide seems to be turning. Real money is being invested in biomedical research here in the UK and in the USA. This is…

Position Statement: 2021 NICE Guideline Update

On the 10th of November 2020, the National Institute for Health and Care Excellence (NICE) published its draft updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). NICE has updated its 2007 recommendations on the use of psycho-behavioural treatments for ME/CFS, concluding that Graded Exercise Therapy (GET) should no…

Doctors with M.E. launched

The new Doctors with M.E. website has been launched, continuing the steady rollout of our mission. We were honoured that Hever Castle and Gardens celebrated the upcoming launch of our professional association by illuminating the castle in blue last May. Hever Castle and Gardens is one of the UK’s foremost tourist locations, the home of…

…this condition has been so mismanaged throughout medicine. What’s the sociology behind this? How did we remain ignorant for so long?”

Dr. Steve Olson, Kaiser Permanente, Director, Northern California Region

We are listening to legitimate questions and concerns about science.”

Professor Chris Ponting, Geneticist, University of Edinburgh

“I split my clinical time between two illnesses and I can tell you, if I had to choose between the two illnesses, I would rather have H.I.V.”

Professor Nancy Klimas, Physician, Institute for Neuro-Immune Medicine

“…it is already now time for the medical profession as well as the whole society to repent.”

Professor Ola Didrik Saugstad, WHO Advisor

“People become traumatized by debilitating ME and then become traumatized again by the reaction to them by people who don’t understand.”

Professor Leonard Jason, Director of Center for Community Research

“…there is no question that there are a considerable number of individuals who have a post-viral syndrome highly suggestive of myalgic encephalomyelitis and chronic fatigue syndrome, this is something we really need to seriously look at.”

Dr. Anthony Fauci, Director, NAID, US NIH, on Long Covid

“ME/CFS is a biological illness, not a psychologic disorder. Patients with ME/CFS are neither malingering nor seeking secondary gain”

US Centers for Disease Control and Prevention