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Doctors with M.E.

The global professional association for medical practitioners, scientists and researchers in the field of myalgic encephalomyelitis.

The leading international experts in the field of post-viral disease and related conditions.

Our mission

To improve patient outcomes worldwide by empowering medics, scientists and policymakers with up-to-date practices and scientific rigour, fostering collaboration between professionals, the industries they serve, patients and the public.

Our vision

We build a future where every surgery, hospital, agency, insurance provider and employer is enabled with accurate information that supports their patients, clients, shareholders and wider stakeholders.

Global footprint

Harvard University

University of Edinburgh

University of Oxford

Columbia University

DePaul University

UK NHS

London School of Hygiene and Tropical Medicine

Stanford University

World Globe Map International

British Medical Association

Who we are

Doctors with M.E. is the global professional association of medical practitioners, scientists and researchers in the field, bringing together leading experts and the pre-pandemic quarter of a million healthcare professionals with ME.

What we do

Doctors with M.E. empowers medics, scientists, industry and policymakers with evidence based practices and scientific rigour, distributing regionally produced content to a global audience as the umbrella body representing our professions.

What is ME?

Myalgic encephalomyelitis is a complex, chronic, multi-system physical disease which causes unusually severe disability and can affect people of any age or demographic, including children. ME is often referred to by the problematic legacy term “chronic fatigue syndrome” or ME/CFS.

Our code

The Doctors with M.E. Code is composed of our Code of Ethics and Conduct and our Application Policy, pursuant to our obligations under statute and wider professional standards.

laboratory, analysis, chemistry

Bringing the state of the art to ME/CFS medical practice, research and policy

ME is one of the great public health challenges of our age. Unusually disabling, misunderstood and maligned. The evidence is that both diagnosis and management are too often driven by lack of medical knowledge and misconceptions

Key stats

30m

individual cases globally (pre pandemic)


Long Covid prevalence rates that meet ME diagnostic criteria are not yet quantified

250k

healthcare worker cases globally (pre pandemic)


Long Covid prevalence rates that meet ME diagnostic criteria are not yet quantified

9000+

article assessment corroborating regulatory failure of medical norms


US Institute of Medicine assessment of ME systemic exertion intolerance

100%

regulatory failure of medical norms


BPS papers ranked 87% very low quality, 13% low quality in UK NICE assessment

Join DwME

Make a difference by joining a group of experts that is growing worldwide. Drive best practice and scientific rigour in this field and join with colleagues from across the globe. Achieve professional impact in a field with unusual opportunity.

Putting it into Practice: What NICE ME/CFS means for GPs

Contents Overview Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a chronic, complex, multi-system organic illness with often devastating consequences. It can affect different aspects of life for both people with ME/CFS and their families and carers, including work and education, activities of daily living, family life, social life and emotional wellbeing.…

Festive wishes and reflections on 2021

2021 has been exciting and complicated in equal measure. After our successful launch, we enjoy ongoing successes, in behind the scenes policy fora, third party engagements and the visible frontline. We have a primed pipeline of current and future activities to look forward to. We thank our personnel who have taken on additional workloads and…

woman holding microphone standing in front of crowd

ME/CFS: The urgent need for improved generalist medical education

Doctors are currently underprepared for care of patients with Myalgic Encephalomyelitis (ME/CFS) and medical education in this area is deficient.  ME/CFS is a complex, chronic multi-system condition which affects at least 250,000 people in the UK, and frequently develops following a viral infection.(1)(2)  Importantly, a growing number of people living with chronic disease following Covid-19…

Health Education England removes Long Covid video after scientific evidence supports complaints

Professor Trudie Chalder of King’s College London, co-author of widely debunked PACE trial and Director of the Persistent Physical Symptom Service at South London and Maudsley NHS Trust, gives dangerous advice, ignorant of pertinent clinical knowledge, and presents trial findings in a misleading manner in a webinar on Long Covid that is now removed from…

A doctor who doesn’t believe she is ill

The newly published 2021 NICE guideline on ME/CFS calls for a change in culture, from one of stigma and disbelief to one which listens to the patient. Doctors with M.E. starts by listening to one patient’s story. Dr. Hng collapses at work and still doesn’t know she is ill. She doesn’t call for help. She…

NICE 2021: A Triumph of Science over Discrimination

Doctors with M.E. stands ready to work with partners and organisations to bring medical education up-to-date and assist in developing the right services for ME/CFS patients. “The new guideline represents a positive and total paradigm change, uniting around the science, official disease classification and medico-legal compliance implications.” “This translation of scientific knowledge into clinical practice…

DwME recognises research scientist Caroline Kingdon with post-viral clinical expert Dr. William Weir

Doctors with M.E. recognise the contributions to clinical practice, research literature and scientific innovation of our latest Honorary Fellows, Caroline Kingdon and Dr. William Weir. Their contributions have accelerated the quality of empirical work and grounded the literature in frontline clinical relevance. This experience has most recently culminated in their roles as full Committee Members…

girl leaning her head on her hand while closing her eyes

Public Letter to RCPCH: DwME Associate and Neurodisability Paediatrician Dr. Ben Marsh calls for explanation

A call for the Royal College of Paediatrics and Child Health to explain undermining of scientific review Doctors with M.E. Associate, Neurodisability Paediatrician and representative on the JLA Priority Setting Partnership Steering Group, Dr. Ben Marsh, has publicly written to the President of The Royal College of Paediatrics and Child Health (RCPCH). He requested an explanation for the College’s…

The NICE debacle – will NICE survive?

The current NICE debacle and extraordinary deviation from normal procedure and published protocol is further evidence of institutionalised discrimination by large sections of the UK medical establishment.  That one professional and patient group should be treated in a manner at odds with clear and growing scientific knowledge would be unacceptable in any other disease.  Yet…

person writing on a notebook beside macbook

Webinar Training Series: Myalgic Encephalomyelitis: “How the Paradigm has Shifted”

We are pleased to announce a brand new webinar series organised by partner organisation Hope 4 ME & Fibro Northern Ireland, in association with many respected organisations including Doctors with M.E., the Workwell Foundation and the London School of Hygiene and Tropical Medicine. Running now until 6th October 2021. Sign up for a weekly programme…

…this condition has been so mismanaged throughout medicine. What’s the sociology behind this? How did we remain ignorant for so long?”

Dr. Steve Olson, Kaiser Permanente, Director, Northern California Region

We are listening to legitimate questions and concerns about science.”

Professor Chris Ponting, Geneticist, University of Edinburgh

“I split my clinical time between two illnesses and I can tell you, if I had to choose between the two illnesses, I would rather have H.I.V.”

Professor Nancy Klimas, Physician, Institute for Neuro-Immune Medicine

“…it is already now time for the medical profession as well as the whole society to repent.”

Professor Ola Didrik Saugstad, WHO Advisor

“People become traumatized by debilitating ME and then become traumatized again by the reaction to them by people who don’t understand.”

Professor Leonard Jason, Director of Center for Community Research

“…there is no question that there are a considerable number of individuals who have a post-viral syndrome highly suggestive of myalgic encephalomyelitis and chronic fatigue syndrome, this is something we really need to seriously look at.”

Dr. Anthony Fauci, Director, NAID, US NIH, on Long Covid

“ME/CFS is a biological illness, not a psychologic disorder. Patients with ME/CFS are neither malingering nor seeking secondary gain”

US Centers for Disease Control and Prevention