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Compliance NICE 2021 Policy Positions

Normalised Medical Rule Breaking and the UK DHSC ME/CFS Review

Replacing Working Group Glass Ceilings with Enforceable Minimal Standards (clickable video chapters below and on YouTube site) Further to our recent statement regarding major UK announcements, the above presentation provides the solution to concerns about new DHSC ME/CFS Delivery Planning mechanisms and final implementation. Current glass ceilings will limit success of this new process and…Continue readingNormalised Medical Rule Breaking and the UK DHSC ME/CFS Review

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News NICE 2021 Policy Positions

Statement on UK DHSC Announcements and the APPG Rethinking ME Report

Doctors with M.E. warmly welcomes the UK Secretary of State for Health and Social Care’s recent inauguration of cross-nation delivery planning processes with his Chief Scientific Officer, Professor Lucy Chappell. Sajid Javid’s intervention on social media in the case of Maeve O’Neill was strikingly poignant, touching the hearts of many patients, carers and medics. We…Continue readingStatement on UK DHSC Announcements and the APPG Rethinking ME Report

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Education News Opinion

Known unknowns, and as yet medically unexplained diseases

Doctors with M.E. Honorary Fellow, Dr. David Strain, published the following well-received article on 12th May 2022, as part of the British Medical Association’s recognistion of World ME Awareness Day. It’s the first global awareness day for ME – myalgic encephalomyelitis, or chronic fatigue syndrome – and time to acknowledge medicine still has a lot…Continue readingKnown unknowns, and as yet medically unexplained diseases

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News Press Releases

Project Florence Grant – Unified Digital Platform for Postviral Disease Professionals and Practitioners

Education, Collaboration and Policy Planning Initiative Following a generous private grant of resources targeted specifically at Project Florence, we are proud to publicly announce the initiative, which is now moving into a test phase following pandemic driven delays. Doctors with M.E. Registrants and Strategic Partners will benefit from a new digital platform that unifies education…Continue readingProject Florence Grant – Unified Digital Platform for Postviral Disease Professionals and Practitioners

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Education Learning Resources and CPD ME/CFS Guidelines News

La guía NICE EM/SFC aplicada a la práctica en atención primaria

Traducido por / Translated by Dr. Esther GarcésDoctors with M.E. Associate, Family Physician and RadiologistMédico especialista en Medicina Familiar y Comunitaria y Médico especialista en Radiodiagnóstico Contenido Descripción General La Encefalomielitis Miálgica (EM) —también conocida como Síndrome de Fatiga Crónica (SFC)— es una enfermedad orgánica crónica, compleja y multisistémica con consecuencias, a menudo, devastadoras. Se…Continue readingLa guía NICE EM/SFC aplicada a la práctica en atención primaria

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Education Learning Resources and CPD ME/CFS Guidelines News

Dari garis panduan kepada praktikal: Implikasi NICE ME/CFS buat doktor-doktor pakar perubatan keluarga (GP)

Sumber asal diterbitkan dalam Bahasa Inggeris pada 15/1/2022. Diterjemahkan oleh / Translated byDr Hannah Nazri MBChB, BSc (Hons), MSc (Oxon)Doctors with M.E. Associate, clinician scientist, entrepreneur, and women’s rights & education advocate.Instagram | Twitter | LinkedIn | Blog Kandungan Gambaran keseluruhan Myalgic Encephalomyelitis (ME), juga dikenali sebagai Sindrom Kelesuan Kronik (Chronic Fatigue Syndrome – CFS),…Continue readingDari garis panduan kepada praktikal: Implikasi NICE ME/CFS buat doktor-doktor pakar perubatan keluarga (GP)

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Education News

Facilitators to better ME Care

It is widely acknowledged that barriers to good care for ME/CFS patients exist due to the lack of biomarker, disease specific treatments and poor medical education about this disease. There is also inherent cultural bias against invisible illness and illnesses affecting predominantly women.  We sought the opinions of 656 volunteers who took the time and…Continue readingFacilitators to better ME Care

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Education Learning Resources and CPD ME/CFS Guidelines News

Mise en pratique : Ce que l’EM/SFC signifie pour les médecins généralistes, selon les préconisations du NICE

Publié initialement en anglais le 15/01/2022. Veuillez nous excuser, nous sommes conscients qu’il y a un problème de ponctuation. Nous faisons notre maximum pour le résoudre au plus vite. Traduit par Millions Missing France Contenu Vue d’ensemble L’encéphalomyélite myalgique (EM), également connue sous le nom de syndrome de fatigue chronique (SFC), est une maladie biologique…Continue readingMise en pratique : Ce que l’EM/SFC signifie pour les médecins généralistes, selon les préconisations du NICE

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Education Learning Resources and CPD News Patient Perspective

Myalgic Encephalomyelitis: Northern Ireland Educational Webinar Series

We are pleased to announce that the M.E. (Myalgic Encephalomyelitis) Educational Webinar Series organised by partner organisation Hope 4 ME & Fibro Northern Ireland and hosted by the Health and Social Care Clinical Education Centre of Northern Ireland is now available for public viewing. Featuring experts and speakers from Hope 4 ME & Fibro N.I.,…Continue readingMyalgic Encephalomyelitis: Northern Ireland Educational Webinar Series

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2022 Compliance Education Learning Resources and CPD ME/CFS Guidelines News NICE 2021

Putting it into Practice: What NICE ME/CFS means for GPs

Contents Overview Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children and all social classes. About 75% of sufferers are female. It has a worse quality of life score than many other serious illnesses including cancer,…Continue readingPutting it into Practice: What NICE ME/CFS means for GPs