News and Press

  • Putting it into Practice: What NICE ME/CFS means for GPs
    Contents Overview Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a chronic, complex, multi-system organic illness with often devastating consequences. It can affect different aspects of life for both people with ME/CFS and their families and carers, including work and education, activities of daily living, family life, social life and emotional wellbeing.…
  • Festive wishes and reflections on 2021
    2021 has been exciting and complicated in equal measure. After our successful launch, we enjoy ongoing successes, in behind the scenes policy fora, third party engagements and the visible frontline. We have a primed pipeline of current and future activities to look forward to. We thank our personnel who have taken on additional workloads and…
  • ME/CFS: The urgent need for improved generalist medical education
    Doctors are currently underprepared for care of patients with Myalgic Encephalomyelitis (ME/CFS) and medical education in this area is deficient.  ME/CFS is a complex, chronic multi-system condition which affects at least 250,000 people in the UK, and frequently develops following a viral infection.(1)(2)  Importantly, a growing number of people living with chronic disease following Covid-19…
  • Health Education England removes Long Covid video after scientific evidence supports complaints
    Professor Trudie Chalder of King’s College London, co-author of widely debunked PACE trial and Director of the Persistent Physical Symptom Service at South London and Maudsley NHS Trust, gives dangerous advice, ignorant of pertinent clinical knowledge, and presents trial findings in a misleading manner in a webinar on Long Covid that is now removed from…
  • A doctor who doesn’t believe she is ill
    The newly published 2021 NICE guideline on ME/CFS calls for a change in culture, from one of stigma and disbelief to one which listens to the patient. Doctors with M.E. starts by listening to one patient’s story. Dr. Hng collapses at work and still doesn’t know she is ill. She doesn’t call for help. She…
  • NICE 2021: A Triumph of Science over Discrimination
    Doctors with M.E. stands ready to work with partners and organisations to bring medical education up-to-date and assist in developing the right services for ME/CFS patients. “The new guideline represents a positive and total paradigm change, uniting around the science, official disease classification and medico-legal compliance implications.” “This translation of scientific knowledge into clinical practice…
  • DwME recognises research scientist Caroline Kingdon with post-viral clinical expert Dr. William Weir
    Doctors with M.E. recognise the contributions to clinical practice, research literature and scientific innovation of our latest Honorary Fellows, Caroline Kingdon and Dr. William Weir. Their contributions have accelerated the quality of empirical work and grounded the literature in frontline clinical relevance. This experience has most recently culminated in their roles as full Committee Members…
  • Public Letter to RCPCH: DwME Associate and Neurodisability Paediatrician Dr. Ben Marsh calls for explanation
    A call for the Royal College of Paediatrics and Child Health to explain undermining of scientific review Doctors with M.E. Associate, Neurodisability Paediatrician and representative on the JLA Priority Setting Partnership Steering Group, Dr. Ben Marsh, has publicly written to the President of The Royal College of Paediatrics and Child Health (RCPCH). He requested an explanation for the College’s…
  • The NICE debacle – will NICE survive?
    The current NICE debacle and extraordinary deviation from normal procedure and published protocol is further evidence of institutionalised discrimination by large sections of the UK medical establishment.  That one professional and patient group should be treated in a manner at odds with clear and growing scientific knowledge would be unacceptable in any other disease.  Yet…
  • Webinar Training Series: Myalgic Encephalomyelitis: “How the Paradigm has Shifted”
    We are pleased to announce a brand new webinar series organised by partner organisation Hope 4 ME & Fibro Northern Ireland, in association with many respected organisations including Doctors with M.E., the Workwell Foundation and the London School of Hygiene and Tropical Medicine. Running now until 6th October 2021. Sign up for a weekly programme…
  • Doctors with M.E. Honorary Fellow and founding father of the Human Genome Project comments on the NICE pause – “it is time for the UK to join the rest of the scientific community”
    Doctors with M.E. Honorary Fellow Professor Ron Davis has issued a powerful statement condemning the failure of the UK National Institute of Clinical and Care Excellence to maintain its independence. He describes how it has instead accommodated vested interests, which perpetuate low standards and contra-scientific medical belief systems. “It is a travesty that NICE is…
  • Founding father of Human Genome Project joins Doctors with M.E. with leading evidence based policy expert as Honorary Fellows
    Doctors with M.E. today formally announces two Honorary Fellows, recognised for the value of their contributions to ME/CFS scientific progress, Professors Ron Davis and Brian Hughes. Professor Ron Davis is a global authority on biochemistry, genetics and genomics, Director of the Stanford Genome Technology Center (SGTC) at Stanford University and Director of the Scientific Advisory…
  • Global scientific communities and clinicians urge NICE to Publish ME/CFS Guideline now
    Doctors with M.E. Board, Fellows & Associates are co-signatories to a public letter written by Dr. David Tuller of the Center of Global Public Health at the University of California, Berkeley. The letter writes to urge NICE to publish the new ME/CFS guideline. It is signed by scientists, clinicians, academics and other experts from the…
  • BBC Radio 4: Doctors with M.E. feature on flagship Woman’s Hour
    ME, Long Covid and the NICE Guideline 2021 Delay Doctors with M.E. Director, Dr. Nina Muirhead, and Doctors with M.E Honorary Fellow and Action for ME Medical Advisor, Dr. David Strain, discuss ME/CFS, Long Covid, the NICE guideline delay and the need for more education and resources in an interview on BBC Radio 4 Woman’s…
  • Mayo Clinic: ME/CFS Essentials of Diagnosis and Management Consensus Statement
    This comprehensive article, co-authored by Doctors With M.E. Honorary Fellows, Dr. Lucinda Bateman and Professor Anthony Komaroff, summarises best clinical practice recommendations for generalist and specialist health care providers treating adults affected by ME/CFS. The article covers epidemiology, prognosis, etiology and pathophysiology, diagnostic approach with new diagnostic criteria, and management of ME/CFS. The clinicians behind…
  • Public Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’
    A call for change in the face of long-standing regulatory failure The following public communication from our Governance Board regards the opportunity for a new “Medical Regulatory Agency”, ready for the post-brexit and the machine learning digital eras.  The letter also contains background pertaining to long-standing regulatory failure, unlawful medical norms, contra-scientific medical belief systems and…
  • Announcing our Committees and Working Groups
    Today we announce the Doctors with M.E. Committees and Working Groups structures. These allow our Registrants to participate on ongoing or ad hoc bases, driven by their interests and events. Compliance, legal, policy and practice management professionals are fundamental to driving change. We have thus introduced Compliance and Policy Affiliate registration status, to ensure that all…
  • Rapid Response and Expert Comment: NICE Guideline Delay and Accommodation of Unlawfulness
    We are very disappointed to hear of the ‘pause’ in publication of the NICE ME/CFS Guideline, already delayed in April. Following the hard work of the Guideline Development Group, we received news of the further delay of guideline publication with both dismay and profound concern for practitioners, their organisations and patients. Continued delay or deviation…
  • Honorary Fellow on the new NICE Guideline for ME/CFS: Ten Questions Answered
    Your questions regarding the new NICE Guideline announcement this week have been broken down and addressed by Doctors with M.E. Honorary Fellow, Professor Brian Hughes: 1. What’s going on? 2. How is the new guideline different to the old one? 3. Why is the new guideline being welcomed? 4. Why was the old guideline problematic?…
  • Revisiting NICE Expert Testimony on trials in ME/CFS: Professor Jonathan Edwards
    The following expert testimony was provided to the NICE ME/CFS Guidelines Committee by Professor Jonathan Edwards. It regards the difficulties of conducting trials in ME/CFS and the implications of not accounting for these. The difficulties of conducting intervention trials for the treatment of myalgic encephalomyelitis / chronic fatigue syndrome Summary testimony Therapeutic trials for ME/CFS…
  • Revisiting NICE Expert Testimony on ME/CFS education and training: Dr. Nina Muirhead
    The following expert testimony was provided to the NICE ME/CFS Guidelines Committee by Doctors with M.E. Director, Dr. Nina Muirhead. It regards the problematic context of lacking information, education and support for health and social care professionals. Information, education and support for health and social care professionals providing care for people with ME/CFS. Summary testimony…
  • Honorary Fellow comments on the BMJ and NICE Guideline Committee Resignations
    Is it just me, or is the BMJ’s take on those NICE guideline committee resignations maybe a little biased? The BMJ are reporting that four members of NICE’s guideline committee on ME/CFS have stood down. One is the medical advisor of the ME Association, who stated yesterday that he found it too difficult to combine…
  • Cyber security alert for research, medical and allied communities working on ME or Long Covid
    We strongly advise immediate and ongoing action to secure against live cyber security risks to members of the ME and Long Covid (PASC) research, medical and allied communities. We outline the minimum counter measures that we recommend. This is further to cyber security events that are outlined below, which have been reported to cyber crime…
  • DwME Honorary Fellow responds to RCP post
    Doctors with M.E. Honorary Fellow, Professor Derek Pheby, has responded to Dr. Nina Muirhead’s article for the Royal College of Physicians, following up her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for Long COVID patients. In particular, Dr. Muirhead discusses the recent surge…
  • Royal College of Physicians and DwME on the ME/CFS interest surge
    Doctors with M.E. Director, Dr. Nina Muirhead, has written for the Royal College of Physicians in a follow up to her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for Long COVID patients. In particular, Dr. Muirhead discusses the recent surge in clinical interest…
  • DwME joins call for NICE to maintain scientific process
    Further to our position statement on the 2021 NICE guideline update, Doctors with M.E. has joined the call for NICE to ensure that unconsulted changes are not injected, as these would avoid scrutiny by the scientific community. DwME considers the 2021 NICE guideline to be a watershed moment in the history of ME/CFS medical care…
  • Mass infection is not an option: we must do more to protect our young
    Doctors with M.E. have signed a letter led by epidemiologist Dr. Deepti Gurdasani in The Lancet, warning of grave concerns and consequences from recent UK government announcements. In particular, Doctors with M.E. are extremely concerned regarding the known risks to children from long covid. This letter follows the John Snow Memorandum in The Lancet warning…
  • Stigma and causal attribution – new research
    Causal attributions and perceived stigma for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Doctors with M.E. Honorary Fellow, Professor Leonard Jason, continues his scholarship in the field of ME with his coauthorship of a newly published paper examining the role of stigma and its impact on health-related and social outcomes. In addition to ME’s extremely low…
  • Honorary Fellows and DwME leadership cited – medical profession moves towards belief and support
    Doctors with M.E. Honorary Fellows and Leadership were quoted extensively in a recent article article about post-viral disease by Christina Frangou. Published in the Guardian, the article has been well received by experts in the field and is entitled“‘I felt betrayed’: how Covid research could help patients living with chronic fatigue syndrome.“ Research into long Covid is…
  • Statement: Countess of Mar on Doctors with M.E.
    In the 25 years that I have been working with people with ME the one wish that unites them all is that they should be listened to and believed. At last, the tide seems to be turning. Real money is being invested in biomedical research here in the UK and in the USA. This is…
  • Position Statement: 2021 NICE Guideline Update
    On the 10th of November 2020, the National Institute for Health and Care Excellence (NICE) published its draft updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). NICE has updated its 2007 recommendations on the use of psycho-behavioural treatments for ME/CFS, concluding that Graded Exercise Therapy (GET) should no…
  • Doctors with M.E. launched
    The new Doctors with M.E. website has been launched, continuing the steady rollout of our mission. We were honoured that Hever Castle and Gardens celebrated the upcoming launch of our professional association by illuminating the castle in blue last May. Hever Castle and Gardens is one of the UK’s foremost tourist locations, the home of…
  • Doctors with M.E. driving advancement in frontline care
    “England’s largest GP super partnership, the Modality Partnership, places itself at the forefront of postviral disease management and care” This is a Doctors with M.E. news announcement of developments within Modality of public health importance and not a joint release with Modality England’s largest GP super partnership, the Modality Partnership, with nearly half a million…