Categories
Education Education/CPD Material News Policy Positions Press Releases

Putting it into Practice: What NICE ME/CFS means for GPs

Contents Overview Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a chronic, complex, multi-system organic illness with often devastating consequences. It can affect different aspects of life for both people with ME/CFS and their families and carers, including work and education, activities of daily living, family life, social life and emotional wellbeing.…Continue readingPutting it into Practice: What NICE ME/CFS means for GPs

Categories
Education News Opinion Policy Positions Press Releases

ME/CFS: The urgent need for improved generalist medical education

Doctors are currently underprepared for care of patients with Myalgic Encephalomyelitis (ME/CFS) and medical education in this area is deficient.  ME/CFS is a complex, chronic multi-system condition which affects at least 250,000 people in the UK, and frequently develops following a viral infection.(1)(2)  Importantly, a growing number of people living with chronic disease following Covid-19…Continue readingME/CFS: The urgent need for improved generalist medical education

Categories
Education News Opinion

A doctor who doesn’t believe she is ill

The newly published 2021 NICE guideline on ME/CFS calls for a change in culture, from one of stigma and disbelief to one which listens to the patient. Doctors with M.E. starts by listening to one patient’s story. Dr. Hng collapses at work and still doesn’t know she is ill. She doesn’t call for help. She…Continue readingA doctor who doesn’t believe she is ill

Categories
Compliance Education News Policy Positions Press Releases

NICE 2021: A Triumph of Science over Discrimination

Doctors with M.E. stands ready to work with partners and organisations to bring medical education up-to-date and assist in developing the right services for ME/CFS patients. “The new guideline represents a positive and total paradigm change, uniting around the science, official disease classification and medico-legal compliance implications.” “This translation of scientific knowledge into clinical practice…Continue readingNICE 2021: A Triumph of Science over Discrimination

Categories
Research Commentaries

A Review of ME/CFS: Past, Present and Future

Science’s rejection of psychological dogma Doctors with M.E. Honorary Fellows Dr. William Weir and Dr. Nigel Speight co-author a newly published opinion piece that discusses the past, present and possible future of ME/CFS. In order to give context as to how ME/CFS came to be incorrectly viewed as a psychological disorder, the article draws on…Continue readingA Review of ME/CFS: Past, Present and Future

Categories
News Policy Positions

Global scientific communities and clinicians urge NICE to Publish ME/CFS Guideline now

Doctors with M.E. Board, Fellows & Associates are co-signatories to a public letter written by Dr. David Tuller of the Center of Global Public Health at the University of California, Berkeley. The letter writes to urge NICE to publish the new ME/CFS guideline. It is signed by scientists, clinicians, academics and other experts from the…Continue readingGlobal scientific communities and clinicians urge NICE to Publish ME/CFS Guideline now

Categories
News

BBC Radio 4: Doctors with M.E. feature on flagship Woman’s Hour

ME, Long Covid and the NICE Guideline 2021 Delay Doctors with M.E. Director, Dr. Nina Muirhead, and Doctors with M.E Honorary Fellow and Action for ME Medical Advisor, Dr. David Strain, discuss ME/CFS, Long Covid, the NICE guideline delay and the need for more education and resources in an interview on BBC Radio 4 Woman’s…Continue readingBBC Radio 4: Doctors with M.E. feature on flagship Woman’s Hour

Categories
Education News Policy Positions Research Commentaries

Mayo Clinic: ME/CFS Essentials of Diagnosis and Management Consensus Statement

This comprehensive article, co-authored by Doctors With M.E. Honorary Fellows, Dr. Lucinda Bateman and Professor Anthony Komaroff, summarises best clinical practice recommendations for generalist and specialist health care providers treating adults affected by ME/CFS. The article covers epidemiology, prognosis, etiology and pathophysiology, diagnostic approach with new diagnostic criteria, and management of ME/CFS. The clinicians behind…Continue readingMayo Clinic: ME/CFS Essentials of Diagnosis and Management Consensus Statement

Categories
Education

International Consensus Primer for Medical Practitioners

(download via the Australian National Health and Medical Research Council) The International Consensus Primer (ICP) is a one-stop user-friendly reference that covers aetiology and pathophysiology of ME/CFS, together with guidance regarding personalised assessment, diagnosis, management and treatment for this complex illness. Included within the guide is a comprehensive clinical assessment and diagnostic worksheet, to enable…Continue readingInternational Consensus Primer for Medical Practitioners

Categories
News Policy Positions

Rapid Response and Expert Comment: NICE Guideline Delay and Accommodation of Unlawfulness

We are very disappointed to hear of the ‘pause’ in publication of the NICE ME/CFS Guideline, already delayed in April. Following the hard work of the Guideline Development Group, we received news of the further delay of guideline publication with both dismay and profound concern for practitioners, their organisations and patients. Continued delay or deviation…Continue readingRapid Response and Expert Comment: NICE Guideline Delay and Accommodation of Unlawfulness