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Compliance Education Learning Resources and CPD News Research Commentaries

Poor knowledge of ME/CFS among doctors puts patients at risk of harm

An Audit of UK Hospital Doctors’ Knowledge and Experience of Myalgic Encephalomyelitis Doctors with M.E. Founder and Director Dr. KN Hng, Director Dr. Keith Geraghty and Honorary Fellow Prof. Derek Pheby report their findings regarding ME/CFS knowledge and understanding amongst the medical community following an audit of hospital doctors at a training event in the…Continue readingPoor knowledge of ME/CFS among doctors puts patients at risk of harm

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Education Learning Resources and CPD ME/CFS Guidelines News

La guía NICE EM/SFC aplicada a la práctica en atención primaria

Traducido por / Translated by Dr. Esther GarcésDoctors with M.E. Associate, Family Physician and RadiologistMédico especialista en Medicina Familiar y Comunitaria y Médico especialista en Radiodiagnóstico Contenido Descripción General La Encefalomielitis Miálgica (EM) —también conocida como Síndrome de Fatiga Crónica (SFC)— es una enfermedad orgánica crónica, compleja y multisistémica con consecuencias, a menudo, devastadoras. Se…Continue readingLa guía NICE EM/SFC aplicada a la práctica en atención primaria

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Education Opinion Patient Perspective

What does good practice look like? Patients chip in

When faced with a life changing, devastating chronic illness with no cure in a young person, doctors often don’t know what to do. Doctors with M.E. has produced guidance for GPs, but what do patients want? We asked patients to share examples of when doctors got it right. It is heartening to read this collection…Continue readingWhat does good practice look like? Patients chip in

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Education Learning Resources and CPD News Patient Perspective

Myalgic Encephalomyelitis: Northern Ireland Educational Webinar Series

We are pleased to announce that the M.E. (Myalgic Encephalomyelitis) Educational Webinar Series organised by partner organisation Hope 4 ME & Fibro Northern Ireland and hosted by the Health and Social Care Clinical Education Centre of Northern Ireland is now available for public viewing. Featuring experts and speakers from Hope 4 ME & Fibro N.I.,…Continue readingMyalgic Encephalomyelitis: Northern Ireland Educational Webinar Series

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Compliance News Opinion Policy Positions Press Releases

The NICE debacle – will NICE survive?

The current NICE debacle and extraordinary deviation from normal procedure and published protocol is further evidence of institutionalised discrimination by large sections of the UK medical establishment.  That one professional and patient group should be treated in a manner at odds with clear and growing scientific knowledge would be unacceptable in any other disease.  Yet…Continue readingThe NICE debacle – will NICE survive?

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Research Commentaries

A Review of ME/CFS: Past, Present and Future

Science’s rejection of psychological dogma Doctors with M.E. Honorary Fellows Dr. William Weir and Dr. Nigel Speight co-author a newly published opinion piece that discusses the past, present and possible future of ME/CFS. In order to give context as to how ME/CFS came to be incorrectly viewed as a psychological disorder, the article draws on…Continue readingA Review of ME/CFS: Past, Present and Future

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Research Commentaries

Rethinking Care for ME/CFS Patients

Rethinking the Standard of Care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome This recent report by Friedberg et al. critically examines research claiming that Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET) are effective and safe treatments for ME/CFS. Analysis reveals unsubstantiated claims of recovery in non-blinded trials, which relied on subjective outcome measures, overly broad…Continue readingRethinking Care for ME/CFS Patients

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Research Commentaries

Monitoring Treatment Harm in the NHS

Monitoring treatment harm in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: A freedom-of-information study of National Health Service specialist centres in England Doctors with M.E. Honorary Fellows, Professor Brian Hughes and Tom Kindlon co-author important research investigating the reporting of treatment-related harm in ME/CFS following the use of graded exercise therapy (GET) and Cognitive Behavioural Therapy…Continue readingMonitoring Treatment Harm in the NHS

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Compliance

Expertise procurement risk and reputational risk – medical and legal

Care should be taken to reassess existing expertise sources in the field of post-viral disease and to distinguish between 1) the marketability or familiarity of expertise versus 2) disproportionate risk of divergence from legally sustainable standards. It is rare for institutionalised medical norms to exclude scientific consensus to the degree witnessed in this field. This…Continue readingExpertise procurement risk and reputational risk – medical and legal

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Compliance

Jurisdictions and markets (UK and international)

Although the jurisdictional focus is the United Kingdom, direct equivalence can be found in other jurisdictions and markets. The policy, contractual and legal requirements on medical practice and indemnification provision follow a similar structure in most locales: neither official edict, professional body, private contract, the habitual nature of unlawful care nor eminently misinformed obfuscation can…Continue readingJurisdictions and markets (UK and international)