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Education Education/CPD Material News Policy Positions Press Releases

Putting it into Practice: What NICE ME/CFS means for GPs

Contents Overview Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a chronic, complex, multi-system organic illness with often devastating consequences. It can affect different aspects of life for both people with ME/CFS and their families and carers, including work and education, activities of daily living, family life, social life and emotional wellbeing.…Continue readingPutting it into Practice: What NICE ME/CFS means for GPs

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News Opinion

Festive wishes and reflections on 2021

2021 has been exciting and complicated in equal measure. After our successful launch, we enjoy ongoing successes, in behind the scenes policy fora, third party engagements and the visible frontline. We have a primed pipeline of current and future activities to look forward to. We thank our personnel who have taken on additional workloads and…Continue readingFestive wishes and reflections on 2021

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Education News Opinion

A doctor who doesn’t believe she is ill

The newly published 2021 NICE guideline on ME/CFS calls for a change in culture, from one of stigma and disbelief to one which listens to the patient. Doctors with M.E. starts by listening to one patient’s story. Dr. Hng collapses at work and still doesn’t know she is ill. She doesn’t call for help. She…Continue readingA doctor who doesn’t believe she is ill

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News Policy Positions Press Releases

The NICE debacle – will NICE survive?

The current NICE debacle and extraordinary deviation from normal procedure and published protocol is further evidence of institutionalised discrimination by large sections of the UK medical establishment.  That one professional and patient group should be treated in a manner at odds with clear and growing scientific knowledge would be unacceptable in any other disease.  Yet…Continue readingThe NICE debacle – will NICE survive?

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News

Founding father of Human Genome Project joins Doctors with M.E. with leading evidence based policy expert as Honorary Fellows

Doctors with M.E. today formally announces two Honorary Fellows, recognised for the value of their contributions to ME/CFS scientific progress, Professors Ron Davis and Brian Hughes. Professor Ron Davis is a global authority on biochemistry, genetics and genomics, Director of the Stanford Genome Technology Center (SGTC) at Stanford University and Director of the Scientific Advisory…Continue readingFounding father of Human Genome Project joins Doctors with M.E. with leading evidence based policy expert as Honorary Fellows

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Compliance News Policy Positions Press Releases

Public Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’

A call for change in the face of long-standing regulatory failure The following public communication from our Governance Board regards the opportunity for a new “Medical Regulatory Agency”, ready for the post-brexit and the machine learning digital eras.  The letter also contains background pertaining to long-standing regulatory failure, unlawful medical norms, contra-scientific medical belief systems and…Continue readingPublic Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’

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Compliance News

Announcing our Committees and Working Groups

Today we announce the Doctors with M.E. Committees and Working Groups structures. These allow our Registrants to participate on ongoing or ad hoc bases, driven by their interests and events. Compliance, legal, policy and practice management professionals are fundamental to driving change. We have thus introduced Compliance and Policy Affiliate registration status, to ensure that all…Continue readingAnnouncing our Committees and Working Groups

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News

Revisiting NICE Expert Testimony on trials in ME/CFS: Professor Jonathan Edwards

The following expert testimony was provided to the NICE ME/CFS Guidelines Committee by Professor Jonathan Edwards. It regards the difficulties of conducting trials in ME/CFS and the implications of not accounting for these. The difficulties of conducting intervention trials for the treatment of myalgic encephalomyelitis / chronic fatigue syndrome Summary testimony Therapeutic trials for ME/CFS…Continue readingRevisiting NICE Expert Testimony on trials in ME/CFS: Professor Jonathan Edwards

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Compliance

Obligation to not abuse power and authority

It is common that patients with ME/CFS must repeatedly pursue enforcement action of their pre-existing rights under statutes, policy and common law. It also known that successful enforcement of pre-existing rights can be followed by retributory abuse of power and authority. It is known that flagrantly retributory liability generation can include punishing qualified professionals who…Continue readingObligation to not abuse power and authority

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Compliance

Tests of clinical judgement lawfulness

Informed by the scientific, statutory and policy contexts outlined above, the following simple tests of clinical judgement lawfulness further outline lawful policy implementation requirements, mitigating the elevated probability of normalised unlawful clinical judgement in this context. Contrary conclusions constitute unlawful discriminatory implementation of policy, an arbitrary evasion of clear wording, thus discriminating on the very…Continue readingTests of clinical judgement lawfulness