Replacing Working Group Glass Ceilings with Enforceable Minimal Standards (clickable video chapters below and on YouTube site) Further to our recent statement regarding major UK announcements, the above presentation provides the solution to concerns about new DHSC ME/CFS Delivery Planning mechanisms and final implementation. Current glass ceilings will limit success of this new process and…Continue readingNormalised Medical Rule Breaking and the UK DHSC ME/CFS Review
Tag: Risk
Education, Collaboration and Policy Planning Initiative Following a generous private grant of resources targeted specifically at Project Florence, we are proud to publicly announce the initiative, which is now moving into a test phase following pandemic driven delays. Doctors with M.E. Registrants and Strategic Partners will benefit from a new digital platform that unifies education…Continue readingProject Florence Grant – Unified Digital Platform for Postviral Disease Professionals and Practitioners
An Audit of UK Hospital Doctors’ Knowledge and Experience of Myalgic Encephalomyelitis Doctors with M.E. Founder and Director Dr. KN Hng, Director Dr. Keith Geraghty and Honorary Fellow Prof. Derek Pheby report their findings regarding ME/CFS knowledge and understanding amongst the medical community following an audit of hospital doctors at a training event in the…Continue readingPoor knowledge of ME/CFS among doctors puts patients at risk of harm
Professor Trudie Chalder of King’s College London, co-author of widely debunked PACE trial and Director of the Persistent Physical Symptom Service at South London and Maudsley NHS Trust, gives dangerous advice, ignorant of pertinent clinical knowledge, and presents trial findings in a misleading manner in a webinar on Long Covid that is now removed from…Continue readingHealth Education England removes Long Covid video after scientific evidence supports complaints
Doctors with M.E. stands ready to work with partners and organisations to bring medical education up-to-date and assist in developing the right services for ME/CFS patients. “The new guideline represents a positive and total paradigm change, uniting around the science, official disease classification and medico-legal compliance implications.” “This translation of scientific knowledge into clinical practice…Continue readingNICE 2021: A Triumph of Science over Discrimination
The current NICE debacle and extraordinary deviation from normal procedure and published protocol is further evidence of institutionalised discrimination by large sections of the UK medical establishment. That one professional and patient group should be treated in a manner at odds with clear and growing scientific knowledge would be unacceptable in any other disease. Yet…Continue readingThe NICE debacle – will NICE survive?
Science’s rejection of psychological dogma Doctors with M.E. Honorary Fellows Dr. William Weir and Dr. Nigel Speight co-author a newly published opinion piece that discusses the past, present and possible future of ME/CFS. In order to give context as to how ME/CFS came to be incorrectly viewed as a psychological disorder, the article draws on…Continue readingA Review of ME/CFS: Past, Present and Future
ME, Long Covid and the NICE Guideline 2021 Delay Doctors with M.E. Director, Dr. Nina Muirhead, and Doctors with M.E Honorary Fellow and Action for ME Medical Advisor, Dr. David Strain, discuss ME/CFS, Long Covid, the NICE guideline delay and the need for more education and resources in an interview on BBC Radio 4 Woman’s…Continue readingBBC Radio 4: Doctors with M.E. feature on flagship Woman’s Hour
This comprehensive article, co-authored by Doctors With M.E. Honorary Fellows, Dr. Lucinda Bateman and Professor Anthony Komaroff, summarises best clinical practice recommendations for generalist and specialist health care providers treating adults affected by ME/CFS. The article covers epidemiology, prognosis, etiology and pathophysiology, diagnostic approach with new diagnostic criteria, and management of ME/CFS. The clinicians behind…Continue readingME/CFS: Essentials of Diagnosis and Management – US Consensus Recommendations
A call for change in the face of long-standing regulatory failure The following public communication from our Governance Board regards the opportunity for a new “Medical Regulatory Agency”, ready for the post-brexit and the machine learning digital eras. The letter also contains background pertaining to long-standing regulatory failure, unlawful medical norms, contra-scientific medical belief systems and…Continue readingPublic Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’