Tag: Story

ME/CFS: What Psychiatrists need to know

Post date 21 March 2022
Categories In 2022, Compliance, Education, Learning Resources and CPD, ME/CFS Guidelines, News, NICE 2021

Psychiatry and Psychology Working GroupDr Crowder BSc (hons) MB ChB FRANZCP, Associate, DwMEYochai Re’em, M.D., Associate, DwME | Website | Twitter What is ME/CFS? ME/CFS is a chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children, and all social classes. About 75% of sufferers are female. It has…Continue readingME/CFS: What Psychiatrists need to know

Tags Bateman Horne Center, BDD, BDS, beliefs, BHC, biopsychosocial, Bodily distress, BPS, CDC, Centers for Disease Control and Prevention, CFS, Children, clinical care, clinical features, Clinical judgement, clinical management, Conversion Disorder, CPET, Depression, Diagnosis, education, energy, energy management, Evidence, exercise, flu, FND, Functional, GET, GPs, GRADE, Guidelines, Harm, Harms, History, join, ME, ME/CFS, Medical Education, Medically Unexplained Symptoms, MUS, NICE 2021, Paediatric, Paediatrician, PAG, PEM, PENE, Persistent Physical Symptoms, PESE, physician, Policy, Post Exertional Malaise, PPS, Primer, Psychiatry, Psychiatry and Psychology Working Group, Psychological, psychological therapies, Psychology, psychosomatic, Quality of Life, Referral, Research, Somatisation, Standards, Story, symptoms, Training, University, webinar

2022 Books Education Patient Perspective

Getting compliant with NICE guideline – the patient experience requirement

Post date 16 March 2022
Categories In 2022, Books, Education, Patient Perspective

Section 1.16 of the NICE ME/CFS Guideline requires that health and social care providers ensure that all staff delivering care to people with ME/CFS have an understanding of the patient experience. Doctors with M.E. asked the CFS/ME Research Collaborative Patient Advisory Group (CMRC PAG) what patients make of the new NICE guideline. They shared the…Continue readingGetting compliant with NICE guideline – the patient experience requirement

Education Learning Resources and CPD ME/CFS Guidelines News

Dari garis panduan kepada praktikal: Implikasi NICE ME/CFS buat doktor-doktor pakar perubatan keluarga (GP)

Post date 25 February 2022
Categories In Education, Learning Resources and CPD, ME/CFS Guidelines, News

Sumber asal diterbitkan dalam Bahasa Inggeris pada 15/1/2022. Diterjemahkan oleh / Translated byDr Hannah Nazri MBChB, BSc (Hons), MSc (Oxon)Doctors with M.E. Associate, clinician scientist, entrepreneur, and women’s rights & education advocate.Instagram | Twitter | LinkedIn | Blog Kandungan Gambaran keseluruhan Myalgic Encephalomyelitis (ME), juga dikenali sebagai Sindrom Kelesuan Kronik (Chronic Fatigue Syndrome – CFS),…Continue readingDari garis panduan kepada praktikal: Implikasi NICE ME/CFS buat doktor-doktor pakar perubatan keluarga (GP)

2022 Compliance Education Learning Resources and CPD ME/CFS Guidelines News NICE 2021

Putting it into Practice: What NICE ME/CFS means for GPs

Post date 15 January 2022
Categories In 2022, Compliance, Education, Learning Resources and CPD, ME/CFS Guidelines, News, NICE 2021

Contents Overview Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children and all social classes. About 75% of sufferers are female. It has a worse quality of life score than many other serious illnesses including cancer,…Continue readingPutting it into Practice: What NICE ME/CFS means for GPs

Tags behavioural therapies, beliefs, biopsychosocial, BPS, CFS, Children, clinical features, Clinical judgement, clinical management, Covid, Covid-19, Cure ME, data, Diagnosis, disbelief, education, energy, energy management, Evidence, exercise, expert, experts, Families, flu, FND, Functional, GET, GPs, GRADE, Guidelines, Harm, Harms, health care professionals, History, infection, join, listening, Long Covid, ME, ME Association, ME/CFS, MEA, medical belief, Medical Education, medical norm, Medically Unexplained Symptoms, MUS, Narrative, NHS, NICE 2021, nutrition, obligation, Online, pacing, Paediatric, Paediatrician, PAG, Pandemic, Patient Experience, PEM, PENE, Persistent Physical Symptoms, physician, Policy, Post Exertional Malaise, post-infectious, post-viral, Primary Care, Psychological, psychological therapies, Psychology, psychosomatic, QALY, Quality of Life, recognition, Recovery, Research, Safeguarding, Severe ME, specialist clinics, Standards, Story, symptoms, trainee, vaccination, vaccine, young people

Compliance Education News Press Releases

Health Education England removes Long Covid video after scientific evidence supports complaints

Post date 13 November 2021
Categories In Compliance, Education, News, Press Releases

Professor Trudie Chalder of King’s College London, co-author of widely debunked PACE trial and Director of the Persistent Physical Symptom Service at South London and Maudsley NHS Trust, gives dangerous advice, ignorant of pertinent clinical knowledge, and presents trial findings in a misleading manner in a webinar on Long Covid that is now removed from…Continue readingHealth Education England removes Long Covid video after scientific evidence supports complaints

Tags behavioural therapies, beliefs, Best practice, British Thoracic Society, CFS, Children, Clinical decision making, clinical management, compliance risk, Covid, Criticism, Diagnosis, disbelief, divorce of medical norms, divorce of medical norms from the scientific consensus, divorce of scientific consensus, education, energy, energy production, Evidence, Evidence based, exercise, Experiments, Expert Risk, GET, GRADE, Harm, Harms, Health Education England, History, ignorance, King’s College London, Letter, Long Covid, ME, ME/CFS, Medical Education, Medically Unexplained Symptoms, MUS, NHS, PACE trial, Pandemic, Patient Experience, PEM, PENE, Persistent Physical Symptoms, PESE, Post Exertional Malaise, post-viral, PPS, principal investigator, Psychiatry, Psychological, psychological therapies, psychologisation, Psychology, psychotherapy, Research, Risk, science, Shaun Peter Qureshi, Shaun Qureshi, Society, South London and Maudsley NHS trust, specialist centres, specialist clinics, Story, symptoms, Training, Trudie Chalder, webinar

Books Education Learning Resources and CPD Opinion Patient Perspective

The doctor who doesn’t believe she is ill

Post date 12 November 2021
Categories In Books, Education, Learning Resources and CPD, Opinion, Patient Perspective

The newly published 2021 NICE guideline on ME/CFS calls for a change in culture, from one of stigma and disbelief to one which listens to the patient. Doctors with M.E. starts by listening to one patient’s story. Dr. Hng collapses at work and still doesn’t know she is ill. She doesn’t call for help. She…Continue readingThe doctor who doesn’t believe she is ill

Tags beliefs, Book, CFS, Children, Covid, disbelief, Dr. Hng, education, energy, flu, GET, health care professionals, Influenza, K.N. Hng, lazy, listening, Long Covid, ME, ME/CFS, MEA, Medical Education, MUS, National Health Service, physician, Planning, Policy, Primary Care, Stigma, Story, symptoms, trainee, vaccination

2021 Compliance News NICE 2021 Opinion Policy Positions Press Releases

NICE 2021: A Triumph of Science over Discrimination

Post date 1 November 2021
Categories In 2021, Compliance, News, NICE 2021, Opinion, Policy Positions, Press Releases

Doctors with M.E. stands ready to work with partners and organisations to bring medical education up-to-date and assist in developing the right services for ME/CFS patients. “The new guideline represents a positive and total paradigm change, uniting around the science, official disease classification and medico-legal compliance implications.” “This translation of scientific knowledge into clinical practice…Continue readingNICE 2021: A Triumph of Science over Discrimination

Tags Asad Khan, beliefs, Ben Marsh, Biomedical, biopsychosocial, Brian Hughes, Caroline Kingdon, CFS, Charles Shepherd, Children, clinical care, clinical features, clinical management, commercial opportunities, commercial opportunity, Compliance, compliance risk, Covid, CPD, critical illness insurance, data, David Strain, Diagnosis, disbelief, Discrimination, education, energy, Evidence, Evidence based, exercise, expert, experts, Families, fellows, fibro, Fibromyalgia, financial services, flu, Forward ME, GET, good news, GPs, GRADE, Guidelines, Harm, Harms, health care professionals, health insurance, History, indemnity, indemnity insurance, infection, insurance, K.N. Hng, Karl Morten, Keith Geraghty, Law, Legal, life insurance, Long Covid, ME, ME/CFS, MEA, medical belief, Medical Education, medical norm, Medically Unexplained Symptoms, medico-legal, MUS, Narrative, News, NHS, NICE 2021, Nigel Speight, Nina Muirhead, Paediatric, Paediatrician, Pandemic, Paradigm shift, PENE, PESE, Pharmaceutical, Pharmaceutical industry, Post Exertional Malaise, post-infectious, post-viral, Primary Care, Professional standard, Psychological, psychological therapies, Psychology, recognition, Referral, Research, Richard Ramyar, Risk, Safeguarding, science, scientific consensus, Severe ME, Shaun Peter Qureshi, social work, Standards, Stigma, Story, survey, symptoms, Tom Kindlon, Training, Trials, unlawfulness, William Weir, young people

2021 News Press Releases

DwME recognises research scientist Caroline Kingdon with post-viral clinical expert Dr. William Weir

Post date 1 November 2021
Categories In 2021, News, Press Releases

Doctors with M.E. recognise the contributions to clinical practice, research literature and scientific innovation of our latest Honorary Fellows, Caroline Kingdon and Dr. William Weir. Their contributions have accelerated the quality of empirical work and grounded the literature in frontline clinical relevance. This experience has most recently culminated in their roles as full Committee Members…Continue readingDwME recognises research scientist Caroline Kingdon with post-viral clinical expert Dr. William Weir

2021 Compliance News NICE 2021 Opinion Policy Positions Press Releases

The NICE debacle – will NICE survive?

Post date 22 September 2021
Categories In 2021, Compliance, News, NICE 2021, Opinion, Policy Positions, Press Releases

The current NICE debacle and extraordinary deviation from normal procedure and published protocol is further evidence of institutionalised discrimination by large sections of the UK medical establishment. That one professional and patient group should be treated in a manner at odds with clear and growing scientific knowledge would be unacceptable in any other disease. Yet…Continue readingThe NICE debacle – will NICE survive?

Tags 100% record of regulatory failure, Anthony Komaroff, Bateman Horne Center, Best practice, breaches, CFS, Clinical decision making, clinical features, Clinical judgement, Committees, Compliance, compliance risk, Covid, Criticism, Diagnosis, Discrimination, divorce of medical norms, divorce of medical norms from the scientific consensus, divorce of scientific consensus, education, Evidence, Evidence based, exercise, fellows, Genome, GET, GRADE, Guidelines, Harm, Harms, History, ignorance, join, Judgement, Law, Legal, Long Covid, ME, ME/CFS, medical failure, medical norm, Medicines and Healthcare products Regulatory Agency, MHRA, MUS, NICE 2021, Open Medicine Foundation, Policy, Psychological, Public safety, Risk, Ron Davis, Safeguarding, Safety, science, scientific consensus, scientific review, Standards, Story, Workwell Foundation

Research Commentaries

A Review of ME/CFS: Past, Present and Future

Post date 2 September 2021
Categories In Research Commentaries

Photo by lalesh aldarwish on Pexels.com

Science’s rejection of psychological dogma Doctors with M.E. Honorary Fellows Dr. William Weir and Dr. Nigel Speight co-author a newly published opinion piece that discusses the past, present and possible future of ME/CFS. In order to give context as to how ME/CFS came to be incorrectly viewed as a psychological disorder, the article draws on…Continue readingA Review of ME/CFS: Past, Present and Future