Tag: Genome

The NICE debacle – will NICE survive?

Post date 22 September 2021
Categories In 2021, Compliance, News, NICE 2021, Opinion, Policy Positions, Press Releases

The current NICE debacle and extraordinary deviation from normal procedure and published protocol is further evidence of institutionalised discrimination by large sections of the UK medical establishment. That one professional and patient group should be treated in a manner at odds with clear and growing scientific knowledge would be unacceptable in any other disease. Yet…Continue readingThe NICE debacle – will NICE survive?

Tags 100% record of regulatory failure, Anthony Komaroff, Bateman Horne Center, Best practice, breaches, CFS, Clinical decision making, clinical features, Clinical judgement, Committees, Compliance, compliance risk, Covid, Criticism, Diagnosis, Discrimination, divorce of medical norms, divorce of medical norms from the scientific consensus, divorce of scientific consensus, education, Evidence, Evidence based, exercise, fellows, Genome, GET, GRADE, Guidelines, Harm, Harms, History, ignorance, join, Judgement, Law, Legal, Long Covid, ME, ME/CFS, medical failure, medical norm, Medicines and Healthcare products Regulatory Agency, MHRA, MUS, NICE 2021, Open Medicine Foundation, Policy, Psychological, Public safety, Risk, Ron Davis, Safeguarding, Safety, science, scientific consensus, scientific review, Standards, Story, Workwell Foundation

2021 Compliance News NICE 2021 Opinion Policy Positions

Doctors with M.E. Honorary Fellow and founding father of the Human Genome Project comments on the NICE pause – “it is time for the UK to join the rest of the scientific community”

Post date 13 September 2021
Categories In 2021, Compliance, News, NICE 2021, Opinion, Policy Positions

Stanford University Medical Department

Doctors with M.E. Honorary Fellow Professor Ron Davis has issued a powerful statement condemning the failure of the UK National Institute of Clinical and Care Excellence to maintain its independence. He describes how it has instead accommodated vested interests, which perpetuate low standards and contra-scientific medical belief systems. “It is a travesty that NICE is…Continue readingDoctors with M.E. Honorary Fellow and founding father of the Human Genome Project comments on the NICE pause – “it is time for the UK to join the rest of the scientific community”

Tags beliefs, CFS, Evidence, Evidence based, flu, Genome, Guidelines, Harm, join, ME, ME/CFS, medical belief, medico-legal, NICE 2021, OMF, Open Medicine Foundation, Ron Davis, Standards, Stanford

News Press Releases

Founding father of Human Genome Project joins Doctors with M.E. with leading evidence based policy expert as Honorary Fellows

Post date 13 September 2021
Categories In News, Press Releases

Doctors with M.E. today formally announces two Honorary Fellows, recognised for the value of their contributions to ME/CFS scientific progress, Professors Ron Davis and Brian Hughes. Professor Ron Davis is a global authority on biochemistry, genetics and genomics, Director of the Stanford Genome Technology Center (SGTC) at Stanford University and Director of the Scientific Advisory…Continue readingFounding father of Human Genome Project joins Doctors with M.E. with leading evidence based policy expert as Honorary Fellows

Research Commentaries

Genetic Risk Factors – A Review

Post date 4 August 2021
Categories In Research Commentaries

Photo by Edward Jenner on Pexels.com

Genetic risk factors of ME/CFS: a critical review Doctors with M.E. Honorary Fellow, Professor Chris Ponting co-authors a review that highlights the need for large genome-wide association studies, such as the much anticipated DecodeME project. Such studies are required to identify possible genetic risk factors in ME/CFS, as this could improve our understanding and drive…Continue readingGenetic Risk Factors – A Review

Tags Biobank, Biomedical, CFS, Chris Ponting, Evidence, fellows, flu, Genetics, Genome, Genomic, GWAS, ME, ME/CFS, MECFS, Research, Risk, risk factors, science