When faced with a life changing, devastating chronic illness with no cure in a young person, doctors often don’t know what to do. Doctors with M.E. has produced guidance for GPs, but what do patients want? We asked patients to share examples of when doctors got it right. It is heartening to read this collection…Continue readingWhat does good practice look like? Patients chip in
Tag: Best practice
Professor Trudie Chalder of King’s College London, co-author of widely debunked PACE trial and Director of the Persistent Physical Symptom Service at South London and Maudsley NHS Trust, gives dangerous advice, ignorant of pertinent clinical knowledge, and presents trial findings in a misleading manner in a webinar on Long Covid that is now removed from…Continue readingHealth Education England removes Long Covid video after scientific evidence supports complaints
The current NICE debacle and extraordinary deviation from normal procedure and published protocol is further evidence of institutionalised discrimination by large sections of the UK medical establishment. That one professional and patient group should be treated in a manner at odds with clear and growing scientific knowledge would be unacceptable in any other disease. Yet…Continue readingThe NICE debacle – will NICE survive?
We are pleased to announce a brand new webinar series organised by partner organisation Hope 4 ME & Fibro Northern Ireland, in association with many respected organisations including Doctors with M.E., the Workwell Foundation and the London School of Hygiene and Tropical Medicine. Running now until 6th October 2021. Sign up for a weekly programme…Continue readingWebinar Training Series: Myalgic Encephalomyelitis: “How the Paradigm has Shifted”
Today we announce the Doctors with M.E. Committees and Working Groups structures. These allow our Registrants to participate on ongoing or ad hoc bases, driven by their interests and events. Compliance, legal, policy and practice management professionals are fundamental to driving change. We have thus introduced Compliance and Policy Affiliate registration status, to ensure that all…Continue readingAnnouncing our Committees and Working Groups
Risk generation and unnecessary liability accumulation is commonly exacerbated by low and/or prejudicial standards of communication and/or record keeping in ME/CFS and other post-viral disease contexts. False record taking is commonly experienced in this field. Beyond the statutory contexts, the frequent frontline status quo regularly breaches a range of associated General Medical Council (GMC) and…Continue readingObligation to not mislead or evade diagnosis and to provide sufficient detail (FND, MUS, PPS, ‘dysregulation model’ and Long Covid examples)
We strongly advise immediate and ongoing action to secure against live cyber security risks to members of the ME and Long Covid (PASC) research, medical and allied communities. We outline the minimum counter measures that we recommend. This is further to cyber security events that are outlined below, which have been reported to cyber crime…Continue readingCyber security alert for research, medical and allied communities working on ME or Long Covid
Further to our position statement on the 2021 NICE guideline update, Doctors with M.E. has joined the call for NICE to ensure that unconsulted changes are not injected, as these would avoid scrutiny by the scientific community. DwME considers the 2021 NICE guideline to be a watershed moment in the history of ME/CFS medical care…Continue readingDwME joins call for NICE to maintain scientific process
“England’s largest GP super partnership, the Modality Partnership, places itself at the forefront of postviral disease management and care” This is a Doctors with M.E. news announcement of developments within Modality of public health importance and not a joint release with Modality England’s largest GP super partnership, the Modality Partnership, with nearly half a million…Continue readingDoctors with M.E. driving advancement in frontline care