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Opinion

A doctor who doesn’t believe she is ill

The newly published 2021 NICE guideline on ME/CFS calls for a change in culture, from one of stigma and disbelief to one which listens to the patient. Doctors with M.E. starts by listening to one patient’s story. Dr. Hng collapses at work and still doesn’t know she is ill. She doesn’t call for help. She…Continue readingA doctor who doesn’t believe she is ill

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Compliance Education News Policy Positions Press Releases

NICE 2021: A Triumph of Science over Discrimination

Doctors with M.E. stands ready to work with partners and organisations to bring medical education up-to-date and assist in developing the right services for ME/CFS patients. “The new guideline represents a positive and total paradigm change, uniting around the science, official disease classification and medico-legal compliance implications.” “This translation of scientific knowledge into clinical practice…Continue readingNICE 2021: A Triumph of Science over Discrimination

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News

BBC Radio 4: Doctors with M.E. feature on flagship Woman’s Hour

ME, Long Covid and the NICE Guideline 2021 Delay Doctors with M.E. Director, Dr. Nina Muirhead, and Doctors with M.E Honorary Fellow and Action for ME Medical Advisor, Dr. David Strain, discuss ME/CFS, Long Covid, the NICE guideline delay and the need for more education and resources in an interview on BBC Radio 4 Woman’s…Continue readingBBC Radio 4: Doctors with M.E. feature on flagship Woman’s Hour

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Education News Policy Positions Research Commentaries

Mayo Clinic: ME/CFS Essentials of Diagnosis and Management Consensus Statement

This comprehensive article, co-authored by Doctors With M.E. Honorary Fellows, Dr. Lucinda Bateman and Professor Anthony Komaroff, summarises best clinical practice recommendations for generalist and specialist health care providers treating adults affected by ME/CFS. The article covers epidemiology, prognosis, etiology and pathophysiology, diagnostic approach with new diagnostic criteria, and management of ME/CFS. The clinicians behind…Continue readingMayo Clinic: ME/CFS Essentials of Diagnosis and Management Consensus Statement

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Education

International Consensus Primer for Medical Practitioners

(download via the Australian National Health and Medical Research Council) The International Consensus Primer (ICP) is a one-stop user-friendly reference that covers aetiology and pathophysiology of ME/CFS, together with guidance regarding personalised assessment, diagnosis, management and treatment for this complex illness. Included within the guide is a comprehensive clinical assessment and diagnostic worksheet, to enable…Continue readingInternational Consensus Primer for Medical Practitioners

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Compliance

Obligation to recognise ME/CFS patient housebound or carer status

House bound status Not accounting for the housebound or bed bound status of a patient when determining treatment or eligibility of a patient can add to or substantiate claims of liability, for resultant harm and financial loss, and/or for discrimination claims. It is extremely common that practitioners / their practices fall foul of these obligations,…Continue readingObligation to recognise ME/CFS patient housebound or carer status

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Compliance

Irrelevance of official edicts and officialised redistribution of liabilities to frontline balance sheets (vaccination and NICE guideline examples)

Neither obfuscation, incorrect pronouncement nor under-informed lack of clarity from governmental, regulatory/self-regulatory or other authorities can change the law, terminal frontline legal requirements nor resultant liability profiles. All decision-making is unavoidably limited by requirements of law, with the elevated likelihood of unlawful decision-making in this field similarly prejudicing top-down communication. The structural difference is only…Continue readingIrrelevance of official edicts and officialised redistribution of liabilities to frontline balance sheets (vaccination and NICE guideline examples)

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Compliance

Tests of model-dictated eligibility lawfulness (QCovid score example)

Identically, models cannot excuse discrimination that is substantiated in law. The simple clinical judgement lawfulness tests above apply to the lawfulness of model driven decision-making. Replacing the word “clinician” with “model” in the tests arrives at identical conclusions: a priori assumption of ineligibility/insufficient eligibility of ME/CFS patient cohorts or individuals is unlawful. Identically, models cannot…Continue readingTests of model-dictated eligibility lawfulness (QCovid score example)

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News

DwME Honorary Fellow responds to RCP post

Doctors with M.E. Honorary Fellow, Professor Derek Pheby, has responded to Dr. Nina Muirhead’s article for the Royal College of Physicians, following up her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for Long COVID patients. In particular, Dr. Muirhead discusses the recent surge…Continue readingDwME Honorary Fellow responds to RCP post

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News

Doctors with M.E. driving advancement in frontline care

“England’s largest GP super partnership, the Modality Partnership, places itself at the forefront of postviral disease management and care” This is a Doctors with M.E. news announcement of developments within Modality of public health importance and not a joint release with Modality England’s largest GP super partnership, the Modality Partnership, with nearly half a million…Continue readingDoctors with M.E. driving advancement in frontline care