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Opinion

A doctor who doesn’t believe she is ill

The newly published 2021 NICE guideline on ME/CFS calls for a change in culture, from one of stigma and disbelief to one which listens to the patient. Doctors with M.E. starts by listening to one patient’s story. Dr. Hng collapses at work and still doesn’t know she is ill. She doesn’t call for help. She…Continue readingA doctor who doesn’t believe she is ill

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Compliance Education News Policy Positions Press Releases

NICE 2021: A Triumph of Science over Discrimination

Doctors with M.E. stands ready to work with partners and organisations to bring medical education up-to-date and assist in developing the right services for ME/CFS patients. “The new guideline represents a positive and total paradigm change, uniting around the science, official disease classification and medico-legal compliance implications.” “This translation of scientific knowledge into clinical practice…Continue readingNICE 2021: A Triumph of Science over Discrimination

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Compliance News Policy Positions Press Releases

Public Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’

A call for change in the face of long-standing regulatory failure The following public communication from our Governance Board regards the opportunity for a new “Medical Regulatory Agency”, ready for the post-brexit and the machine learning digital eras.  The letter also contains background pertaining to long-standing regulatory failure, unlawful medical norms, contra-scientific medical belief systems and…Continue readingPublic Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’

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News

Revisiting NICE Expert Testimony on trials in ME/CFS: Professor Jonathan Edwards

The following expert testimony was provided to the NICE ME/CFS Guidelines Committee by Professor Jonathan Edwards. It regards the difficulties of conducting trials in ME/CFS and the implications of not accounting for these. The difficulties of conducting intervention trials for the treatment of myalgic encephalomyelitis / chronic fatigue syndrome Summary testimony Therapeutic trials for ME/CFS…Continue readingRevisiting NICE Expert Testimony on trials in ME/CFS: Professor Jonathan Edwards

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Education

Reference Text: ME/CFS/PVFS – An Exploration of the Key Clinical Issues

The “Purple Book” – a benchmark text for clinicians and practitioners This guide, co-authored by Doctors with M.E. Honorary Fellow Dr. Charles Shepherd and Consultant Neurologist Dr. Abhijit Chaudhuri, provides a comprehensive review of research, diagnosis, symptoms, and all aspects of management regarding ME/CFS/PVFS. It is an essential evidenced-based summary for all health professionals and…Continue readingReference Text: ME/CFS/PVFS – An Exploration of the Key Clinical Issues

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Research Commentaries

Rethinking Care for ME/CFS Patients

Rethinking the Standard of Care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome This recent report by Friedberg et al. critically examines research claiming that Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET) are effective and safe treatments for ME/CFS. Analysis reveals unsubstantiated claims of recovery in non-blinded trials, which relied on subjective outcome measures, overly broad…Continue readingRethinking Care for ME/CFS Patients

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Compliance Education

Compliance, medico-legal considerations and enforceable obligations

Unmanaged post-viral disease liability, risk exposure and rising pandemic exposure (draft) Compliance obligations for professionals, operational and expertise risks in practice management, social care, occupational health intermediation, insurance underwriting, claims management and reinsurance Summary The role of habitualised unlawful clinical judgement and discrimination that leads to elevated probability of evidentiable malpractice is outlined. Obligations and…Continue readingCompliance, medico-legal considerations and enforceable obligations