Tag: MEA

Public Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’

Post date 29 August 2021
Categories In 2021, Compliance, News, NICE 2021, Policy Positions, Press Releases

Photo by Pixabay on Pexels.com

A call for change in the face of long-standing regulatory failure The following public communication from our Governance Board regards the opportunity for a new “Medical Regulatory Agency”, ready for the post-brexit and the machine learning digital eras. The letter also contains background pertaining to long-standing regulatory failure, unlawful medical norms, contra-scientific medical belief systems and…Continue readingPublic Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’

Tags 100% record of regulatory failure, Benefits, Care Quality Commission, CFS, Compliance, Covid, Criticism, data, Discrimination, Economics, Evidence, Evidence based, exercise, expert, experts, fellows, financial services, Forward ME, Free, Freedom of Information, GET, Guidelines, Harm, Harms, History, insurance, join, Law, Legal, Legal liability, Letter, Liabilities, Liability, Long Covid, Malpractice, ME, ME/CFS, MEA, medical belief, medical norm, medico-legal, MHRA, MUS, National Institute for Health and Care Excellence, News, NHS, NICE 2021, obligation, Paediatric, Pandemic, PEM, physician, Policy, Post Exertional Malaise, post-infectious, post-viral, Professional standard, Quality of Life, RCPCH, Regulation and Legislation, regulatory failure, Research, Research economics, Risk, Royal College of General Practitioners, Royal College of Physicians, science, scientific consensus, scientific review, Society, Standards, Story, Universities, University, unlawfulness

2021 News NICE 2021 Opinion

Revisiting NICE Expert Testimony on trials in ME/CFS: Professor Jonathan Edwards

Post date 16 August 2021
Categories In 2021, News, NICE 2021, Opinion

Photo by Pixabay on Pexels.com

The following expert testimony was provided to the NICE ME/CFS Guidelines Committee by Professor Jonathan Edwards. It regards the difficulties of conducting trials in ME/CFS and the implications of not accounting for these. The difficulties of conducting intervention trials for the treatment of myalgic encephalomyelitis / chronic fatigue syndrome Summary testimony Therapeutic trials for ME/CFS…Continue readingRevisiting NICE Expert Testimony on trials in ME/CFS: Professor Jonathan Edwards

Tags CFS, Evidence, exercise, Experiments, expert, Expert testimony, flu, GET, GRADE, Guidelines, Harm, Harms, Jonathan Edwards, ME, ME/CFS, MEA, NICE 2021, PEM, PENE, PESE, Policy, Post Exertional Malaise, psychological therapies, Psychology, Recovery, Research, Risk, science, Standards, symptoms, Testimony, Training, Trials

Books Education Expert Resources Learning Resources and CPD

Reference Text: ME/CFS/PVFS – An Exploration of the Key Clinical Issues

Post date 14 August 2021
Categories In Books, Education, Expert Resources, Learning Resources and CPD

The “Purple Book” – a benchmark text for clinicians and practitioners This guide, co-authored by Doctors with M.E. Honorary Fellow Dr. Charles Shepherd and Consultant Neurologist Dr. Abhijit Chaudhuri, provides a comprehensive review of research, diagnosis, symptoms, and all aspects of management regarding ME/CFS/PVFS. It is an essential evidenced-based summary for all health professionals and…Continue readingReference Text: ME/CFS/PVFS – An Exploration of the Key Clinical Issues

Research Commentaries

Rethinking Care for ME/CFS Patients

Post date 5 August 2021
Categories In Research Commentaries

Photo by Eren Li on Pexels.com

Rethinking the Standard of Care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome This recent report by Friedberg et al. critically examines research claiming that Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET) are effective and safe treatments for ME/CFS. Analysis reveals unsubstantiated claims of recovery in non-blinded trials, which relied on subjective outcome measures, overly broad…Continue readingRethinking Care for ME/CFS Patients

Compliance

Compliance, medico-legal considerations and enforceable obligations

Post date 23 July 2021
Categories In Compliance

Credit: Weiss Paarz Medical Malpractice Attorneys

Unmanaged post-viral disease liability, risk exposure and rising pandemic exposure (draft) Compliance obligations for professionals, operational and expertise risks in practice management, social care, occupational health intermediation, insurance underwriting, claims management and reinsurance Summary The role of habitualised unlawful clinical judgement and discrimination that leads to elevated probability of evidentiable malpractice is outlined. Obligations and…Continue readingCompliance, medico-legal considerations and enforceable obligations

Tags adolescents, BBC, BDD, BDS, biopsychosocial, BMJ, Bodily distress, Book, breaches, Care Quality Commission, CDC, CFS, Charles Shepherd, claims management, Clinical judgement, Compliance, compliance risk, Conversion Disorder, Covid, Covid-19, CPD, CQC, David Strain, David Tuller, Diagnosis, diagnosis rebranding, Discrimination, dysregulation model, Economics, education, Evidence, exercise, expert, expertise risk, flu, FND, FOIA, Free, Freedom of Information, Functional, Functional Disorder, General Medical Council, Genomic, GET, GMC, Guidelines, Harm, Harms, History, Ian Lipkin, Influenza, insurance, insurance underwriters, insurance underwriting, intermediaries, intermediation, Judgement, Karl Morten, Keith Geraghty, Law, Legal, Letter, Liabilities, Liability, Long Covid, Lucinda Bateman, Luis Nacul, Malpractice, ME, ME Association, ME/CFS, MEA, Medical Education, medical failure, medical norm, Medically Unexplained Symptoms, medico-legal, mitochondria, MUS, National Health Service, Neurology, News, NHS, Nina Muirhead, obligation, occupational health, operational risk, PACE trial, PAG, Pandemic, Pediatric, PENE, Persistent Physical Symptoms, PESE, Policy, Post Exertional Malaise, post-viral, practice management, Procurement, PSS, Psychology, psychosomatic, PTSD, Quality of Life, reinsurance, reinsurers, Reputational risk, Research, Risk, Risk management, science, Somatisation, Somatization, Standards, Stigma, Story, Students, StudyPRN, Testimony, Tom Kindlon, University, unlawfulness, vaccination, vaccine

Compliance

Obligation to not mislead or evade diagnosis and to provide sufficient detail (FND, MUS, PPS, ‘dysregulation model’ and Long Covid examples)

Post date 23 July 2021
Categories In Compliance

Risk generation and unnecessary liability accumulation is commonly exacerbated by low and/or prejudicial standards of communication and/or record keeping in ME/CFS and other post-viral disease contexts. False record taking is commonly experienced in this field. Beyond the statutory contexts, the frequent frontline status quo regularly breaches a range of associated General Medical Council (GMC) and…Continue readingObligation to not mislead or evade diagnosis and to provide sufficient detail (FND, MUS, PPS, ‘dysregulation model’ and Long Covid examples)

Tags BDD, BDS, Best practice, Bodily distress, Book, breaches, Care Quality Commission, CFS, claims management, Clinical judgement, Compliance, compliance risk, Conversion Disorder, Covid, CQC, Diagnosis, diagnosis rebranding, Discrimination, dysregulation model, education, Evidence, expertise risk, FND, Free, Freedom of Information, Functional, Functional Disorder, General Medical Council, GET, GMC, Harm, hydra diagnoses, Influenza, insurance underwriting, intermediation, Judgement, Law, Legal, Liability, Long Covid, ME, ME/CFS, MEA, Medical Education, medical failure, medical norm, Medically Unexplained Symptoms, medico-legal, MUS, Narrative, obligation, occupational health, operational risk, Pandemic, PENE, Persistent Physical Symptoms, PESE, Policy, Post Exertional Malaise, post-viral, PPS, practice management, PSS, PTSD, reinsurance, Risk, Risk management, Somatisation, Somatization, Standards, unlawfulness, vaccination, vaccine

News

Cyber security alert for research, medical and allied communities working on ME or Long Covid

Post date 16 July 2021
Categories In News

We strongly advise immediate and ongoing action to secure against live cyber security risks to members of the ME and Long Covid (PASC) research, medical and allied communities. We outline the minimum counter measures that we recommend. This is further to cyber security events that are outlined below, which have been reported to cyber crime…Continue readingCyber security alert for research, medical and allied communities working on ME or Long Covid

Tags Best practice, Campaigns, Covid, Cyber Security, Free, Functional, GET, join, Law, Long Covid, ME, ME/CFS, MEA, MECFS, medical norm, Medical relationships, Narrative, Online, Pandemic, Policy, Research, Risk, Safety, science, Standards

News Opinion

DwME Honorary Fellow responds to RCP post

Post date 15 July 2021
Categories In News, Opinion

Photo by Karolina Grabowska on Pexels.com

Doctors with M.E. Honorary Fellow, Professor Derek Pheby, has responded to Dr. Nina Muirhead’s article for the Royal College of Physicians, following up her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for Long COVID patients. In particular, Dr. Muirhead discusses the recent surge…Continue readingDwME Honorary Fellow responds to RCP post

News Policy Positions

Mass infection is not an option: we must do more to protect our young

Post date 10 July 2021
Categories In News, Policy Positions

Doctors with M.E. have signed a letter led by epidemiologist Dr. Deepti Gurdasani in The Lancet, warning of grave concerns and consequences from recent UK government announcements. In particular, Doctors with M.E. are extremely concerned regarding the known risks to children from long covid. This letter follows the John Snow Memorandum in The Lancet warning…Continue readingMass infection is not an option: we must do more to protect our young

Tags Announcements, Children, Covid, Covid-19, Evidence, Free, Harm, Harms, infection, Judgement, Letter, Long Covid, ME, MEA, medical failure, MUS, NHS, Paediatric, Pandemic, Policy, post-viral, Risk, Risk management, science, scientific consensus, vaccination, vaccine, Wellbeing, young people

News

Honorary Fellows and DwME leadership cited – medical profession moves towards belief and support

Post date 4 July 2021
Categories In News

Doctors with M.E. Honorary Fellows and Leadership were quoted extensively in a recent article article about post-viral disease by Christina Frangou. Published in the Guardian, the article has been well received by experts in the field and is entitled“‘I felt betrayed’: how Covid research could help patients living with chronic fatigue syndrome.“ Research into long Covid is…Continue readingHonorary Fellows and DwME leadership cited – medical profession moves towards belief and support