Doctors with M.E. Honorary Fellow, Dr. David Strain, published the following well-received article on 12th May 2022, as part of the British Medical Association’s recognition of World ME Awareness Day. It’s the first global awareness day for ME – myalgic encephalomyelitis, or chronic fatigue syndrome – and time to acknowledge medicine still has a lot…Continue readingKnown unknowns, and as yet medically unexplained diseases
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Education, Collaboration and Policy Planning Initiative Following a generous private grant of resources targeted specifically at Project Florence, we are proud to publicly announce the initiative, which is now moving into a test phase following pandemic driven delays. Doctors with M.E. Registrants and Strategic Partners will benefit from a new digital platform that unifies education…Continue readingProject Florence Grant – Unified Digital Platform for Postviral Disease Professionals and Practitioners
Doctors with M.E. recognise the contributions to clinical practice, research literature and scientific innovation of our latest Honorary Fellows, Caroline Kingdon and Dr. William Weir. Their contributions have accelerated the quality of empirical work and grounded the literature in frontline clinical relevance. This experience has most recently culminated in their roles as full Committee Members…Continue readingDwME recognises research scientist Caroline Kingdon with post-viral clinical expert Dr. William Weir
A call for change in the face of long-standing regulatory failure The following public communication from our Governance Board regards the opportunity for a new “Medical Regulatory Agency”, ready for the post-brexit and the machine learning digital eras. The letter also contains background pertaining to long-standing regulatory failure, unlawful medical norms, contra-scientific medical belief systems and…Continue readingPublic Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’
The “Purple Book” – a benchmark text for clinicians and practitioners This guide, co-authored by Doctors with M.E. Honorary Fellow Dr. Charles Shepherd and Consultant Neurologist Dr. Abhijit Chaudhuri, provides a comprehensive review of research, diagnosis, symptoms, and all aspects of management regarding ME/CFS/PVFS. It is an essential evidenced-based summary for all health professionals and…Continue readingReference Text: ME/CFS/PVFS – An Exploration of the Key Clinical Issues
A free online CPD module by Doctors with M.E. Director Dr Nina Muirhead is now available. The module is composed of 10 clinical cases that will challenge and improve your clinical knowledge and patient management for ME/CFS. This CPD module is endorsed by all major charities globally, with additional funding for distribution by the Scottish…Continue readingCPD Module 1hr – Case Studies on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
Monitoring treatment harm in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: A freedom-of-information study of National Health Service specialist centres in England Doctors with M.E. Honorary Fellows, Professor Brian Hughes and Tom Kindlon co-author important research investigating the reporting of treatment-related harm in ME/CFS following the use of graded exercise therapy (GET) and Cognitive Behavioural Therapy…Continue readingMonitoring Treatment Harm in the NHS
Unmanaged post-viral disease liability, risk exposure and rising pandemic exposure (draft) Compliance obligations for professionals, operational and expertise risks in practice management, social care, occupational health intermediation, insurance underwriting, claims management and reinsurance Summary The role of habitualised unlawful clinical judgement and discrimination that leads to elevated probability of evidentiable malpractice is outlined. Obligations and…Continue readingCompliance, medico-legal considerations and enforceable obligations
Risk generation and unnecessary liability accumulation is commonly exacerbated by low and/or prejudicial standards of communication and/or record keeping in ME/CFS and other post-viral disease contexts. False record taking is commonly experienced in this field. Beyond the statutory contexts, the frequent frontline status quo regularly breaches a range of associated General Medical Council (GMC) and…Continue readingObligation to not mislead or evade diagnosis and to provide sufficient detail (FND, MUS, PPS, ‘dysregulation model’ and Long Covid examples)
We strongly advise immediate and ongoing action to secure against live cyber security risks to members of the ME and Long Covid (PASC) research, medical and allied communities. We outline the minimum counter measures that we recommend. This is further to cyber security events that are outlined below, which have been reported to cyber crime…Continue readingCyber security alert for research, medical and allied communities working on ME or Long Covid