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Compliance NICE 2021 Policy Positions

Normalised Medical Rule Breaking and the UK DHSC ME/CFS Review

Replacing Working Group Glass Ceilings with Enforceable Minimal Standards (clickable video chapters below and on YouTube site) Further to our recent statement regarding major UK announcements, the above presentation provides the solution to concerns about new DHSC ME/CFS Delivery Planning mechanisms and final implementation. Current glass ceilings will limit success of this new process and…Continue readingNormalised Medical Rule Breaking and the UK DHSC ME/CFS Review

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News NICE 2021 Policy Positions

BMJ Rapid Response on Unpaid Carers

Doctors with M.E Director and colleagues respond regarding the ignored importance of unpaid carers Doctors with M.E. Director, Dr. Nina Muirhead, has co-authored a BMJ Rapid Response regarding the topic of unpaid carers of people with ME. This important factor is largely ignored by the 2021 NICE ME/CFS Guidelines, the recent APPG report and the…Continue readingBMJ Rapid Response on Unpaid Carers

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News NICE 2021 Policy Positions

Statement on UK DHSC Announcements and the APPG Rethinking ME Report

Doctors with M.E. warmly welcomes the UK Secretary of State for Health and Social Care’s recent inauguration of cross-nation delivery planning processes with his Chief Scientific Officer, Professor Lucy Chappell. Sajid Javid’s intervention on social media in the case of Maeve O’Neill was strikingly poignant, touching the hearts of many patients, carers and medics. We…Continue readingStatement on UK DHSC Announcements and the APPG Rethinking ME Report

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Education News Opinion

Known unknowns, and as yet medically unexplained diseases

Doctors with M.E. Honorary Fellow, Dr. David Strain, published the following well-received article on 12th May 2022, as part of the British Medical Association’s recognistion of World ME Awareness Day. It’s the first global awareness day for ME – myalgic encephalomyelitis, or chronic fatigue syndrome – and time to acknowledge medicine still has a lot…Continue readingKnown unknowns, and as yet medically unexplained diseases

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News

Doctors with M.E. Honorary Fellow to attend Buckingham Palace Garden Party

We are delighted to announce that Doctors with M.E. Honorary Fellow Dr. William Weir and DwME Associate Mrs. Linda Campbell will be attending the Queen’s Garden Party at Buckingham Palace on the 25th May 2022 to receive the Queen’s Award for Voluntary Service on behalf of partner organisation Hope 4 ME & Fibro Northern Ireland.…Continue readingDoctors with M.E. Honorary Fellow to attend Buckingham Palace Garden Party

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Education Patient Perspective Research Commentaries

ME/CFS Clinical Tool – Measuring Family Quality of Life Impact

Striking evidence for how to improve standards of holistic care and service provision The FROM-16 validated quality of life tool is a pragmatic addition to the frontline clinical toolbox, allowing for holistic decision making to be made regarding care and broader service provision. Doctors with M.E. Director Dr. Nina Muirhead presents new findings with her…Continue readingME/CFS Clinical Tool – Measuring Family Quality of Life Impact

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News Press Releases

Project Florence Grant – Unified Digital Platform for Postviral Disease Professionals and Practitioners

Education, Collaboration and Policy Planning Initiative Following a generous private grant of resources targeted specifically at Project Florence, we are proud to publicly announce the initiative, which is now moving into a test phase following pandemic driven delays. Doctors with M.E. Registrants and Strategic Partners will benefit from a new digital platform that unifies education…Continue readingProject Florence Grant – Unified Digital Platform for Postviral Disease Professionals and Practitioners

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Compliance Education Learning Resources and CPD News Research Commentaries

Poor knowledge of ME/CFS among doctors puts patients at risk of harm

An Audit of UK Hospital Doctors’ Knowledge and Experience of Myalgic Encephalomyelitis Doctors with M.E. Founder and Director Dr. KN Hng, Director Dr. Keith Geraghty and Honorary Fellow Prof. Derek Pheby report their findings regarding ME/CFS knowledge and understanding amongst the medical community following an audit of hospital doctors at a training event in the…Continue readingPoor knowledge of ME/CFS among doctors puts patients at risk of harm

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Education Learning Resources and CPD ME/CFS Guidelines News

La guía NICE EM/SFC aplicada a la práctica en atención primaria

Traducido por / Translated by Dr. Esther GarcésDoctors with M.E. Associate, Family Physician and RadiologistMédico especialista en Medicina Familiar y Comunitaria y Médico especialista en Radiodiagnóstico Contenido Descripción General La Encefalomielitis Miálgica (EM) —también conocida como Síndrome de Fatiga Crónica (SFC)— es una enfermedad orgánica crónica, compleja y multisistémica con consecuencias, a menudo, devastadoras. Se…Continue readingLa guía NICE EM/SFC aplicada a la práctica en atención primaria

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2022 Compliance Education Learning Resources and CPD ME/CFS Guidelines News NICE 2021

ME/CFS: What Psychiatrists need to know

Psychiatry and Psychology Working GroupDr Crowder BSc (hons) MB ChB FRANZCP, Associate, DwMEYochai Re’em, M.D., Associate, DwME | Website | Twitter What is ME/CFS? ME/CFS is a chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children, and all social classes. About 75% of sufferers are female. It has…Continue readingME/CFS: What Psychiatrists need to know