Tag: listening

What does good practice look like? Patients chip in

Post date 16 March 2022
Categories In 2022, Education, Patient Perspective

When faced with a life changing, devastating chronic illness with no cure in a young person, doctors often don’t know what to do. Doctors with M.E. has produced guidance for GPs, but what do patients want? We asked patients to share examples of when doctors got it right. It is heartening to read this collection…Continue readingWhat does good practice look like? Patients chip in

Tags Benefits, Best practice, CFS, Diagnosis, energy, Evidence, expert, General Practice, GET, good practice, GPs, Harm, HCP, Letter, listening, ME, ME/CFS, MUS, NICE 2021, OMF, Online, Paediatric, Paediatrician, PAG, PENE, psychosomatic, symptoms

2022 Compliance Education Learning Resources and CPD ME/CFS Guidelines News NICE 2021

Putting it into Practice: What NICE ME/CFS means for GPs

Post date 15 January 2022
Categories In 2022, Compliance, Education, Learning Resources and CPD, ME/CFS Guidelines, News, NICE 2021

Contents Overview Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children and all social classes. About 75% of sufferers are female. It has a worse quality of life score than many other serious illnesses including cancer,…Continue readingPutting it into Practice: What NICE ME/CFS means for GPs

Tags behavioural therapies, beliefs, biopsychosocial, BPS, CFS, Children, clinical features, Clinical judgement, clinical management, Covid, Covid-19, Cure ME, data, Diagnosis, disbelief, education, energy, energy management, Evidence, exercise, expert, experts, Families, flu, FND, Functional, GET, GPs, GRADE, Guidelines, Harm, Harms, health care professionals, History, infection, join, listening, Long Covid, ME, ME Association, ME/CFS, MEA, medical belief, Medical Education, medical norm, Medically Unexplained Symptoms, MUS, Narrative, NHS, NICE 2021, nutrition, obligation, Online, pacing, Paediatric, Paediatrician, PAG, Pandemic, Patient Experience, PEM, PENE, Persistent Physical Symptoms, physician, Policy, Post Exertional Malaise, post-infectious, post-viral, Primary Care, Psychological, psychological therapies, Psychology, psychosomatic, QALY, Quality of Life, recognition, Recovery, Research, Safeguarding, Severe ME, specialist clinics, Standards, Story, symptoms, trainee, vaccination, vaccine, young people

Books Education Learning Resources and CPD Opinion Patient Perspective

The doctor who doesn’t believe she is ill

Post date 12 November 2021
Categories In Books, Education, Learning Resources and CPD, Opinion, Patient Perspective

The newly published 2021 NICE guideline on ME/CFS calls for a change in culture, from one of stigma and disbelief to one which listens to the patient. Doctors with M.E. starts by listening to one patient’s story. Dr. Hng collapses at work and still doesn’t know she is ill. She doesn’t call for help. She…Continue readingThe doctor who doesn’t believe she is ill

Tags beliefs, Book, CFS, Children, Covid, disbelief, Dr. Hng, education, energy, flu, GET, health care professionals, Influenza, K.N. Hng, lazy, listening, Long Covid, ME, ME/CFS, MEA, Medical Education, MUS, National Health Service, physician, Planning, Policy, Primary Care, Stigma, Story, symptoms, trainee, vaccination