Tag: Policy

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Compliance

Obligation to procure ME/CFS medical education

Educational materials defined by legally demonstrable scientific consensus are of material legal consequence versus liability for clinical outcomes, breaches of duty of care and relevant statutory and policy discrimination frameworks discussed in this document. This lack of medical education is documented empirically, by the UK National Institute of Health and Clinical Excellence and addressed by…Continue readingObligation to procure ME/CFS medical education

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Compliance

Knowledge-gap risk and audit trails (examples plus research-market inefficiencies)

Liability-generation from elevated probability of unlawful clinical and administrative judgement does not only stem from practitioners’ incorrect beliefs regarding disease aetiology (causes) and pathology (symptoms). Practitioners also generate further excess risk from their knowledge gap versus formal ME/CFS and related diagnostic criteria, which offer 1) rigour and ease of diagnosis and 2) risky diagnostic audit…Continue readingKnowledge-gap risk and audit trails (examples plus research-market inefficiencies)

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Compliance

Obligation to not mislead or evade diagnosis and to provide sufficient detail (FND, MUS, PPS, ‘dysregulation model’ and Long Covid examples)

Risk generation and unnecessary liability accumulation is commonly exacerbated by low and/or prejudicial standards of communication and/or record keeping in ME/CFS and other post-viral disease contexts. False record taking is commonly experienced in this field. Beyond the statutory contexts, the frequent frontline status quo regularly breaches a range of associated General Medical Council (GMC) and…Continue readingObligation to not mislead or evade diagnosis and to provide sufficient detail (FND, MUS, PPS, ‘dysregulation model’ and Long Covid examples)

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Compliance

Irrelevance of official edicts and officialised redistribution of liabilities to frontline balance sheets (vaccination and NICE guideline examples)

Neither obfuscation, incorrect pronouncement nor under-informed lack of clarity from governmental, regulatory/self-regulatory or other authorities can change the law, terminal frontline legal requirements nor resultant liability profiles. All decision-making is unavoidably limited by requirements of law, with the elevated likelihood of unlawful decision-making in this field similarly prejudicing top-down communication. The structural difference is only…Continue readingIrrelevance of official edicts and officialised redistribution of liabilities to frontline balance sheets (vaccination and NICE guideline examples)

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News

Cyber security alert for research, medical and allied communities working on ME or Long Covid

We strongly advise immediate and ongoing action to secure against live cyber security risks to members of the ME and Long Covid (PASC) research, medical and allied communities. We outline the minimum counter measures that we recommend. This is further to cyber security events that are outlined below, which have been reported to cyber crime…Continue readingCyber security alert for research, medical and allied communities working on ME or Long Covid

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2021 Compliance News NICE 2021 Policy Positions Press Releases

DwME joins call for NICE to maintain scientific process

Further to our position statement on the 2021 NICE guideline update, Doctors with M.E. has joined the call for NICE to ensure that unconsulted changes are not injected, as these would avoid scrutiny by the scientific community. DwME considers the 2021 NICE guideline to be a watershed moment in the history of ME/CFS medical care…Continue readingDwME joins call for NICE to maintain scientific process

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News Policy Positions

Mass infection is not an option: we must do more to protect our young

Doctors with M.E. have signed a letter led by epidemiologist Dr. Deepti Gurdasani in The Lancet, warning of grave concerns and consequences from recent UK government announcements. In particular, Doctors with M.E. are extremely concerned regarding the known risks to children from long covid. This letter follows the John Snow Memorandum in The Lancet warning…Continue readingMass infection is not an option: we must do more to protect our young

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News Opinion

Statement: Countess of Mar on Doctors with M.E.

In the 25 years that I have been working with people with ME the one wish that unites them all is that they should be listened to and believed. At last, the tide seems to be turning. Real money is being invested in biomedical research here in the UK and in the USA. This is…Continue readingStatement: Countess of Mar on Doctors with M.E.

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2021 News NICE 2021 Policy Positions Press Releases

Position Statement: 2021 NICE Guideline Update

On the 10th of November 2020, the National Institute for Health and Care Excellence (NICE) published its draft updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). NICE has updated its 2007 recommendations on the use of psycho-behavioural treatments for ME/CFS, concluding that Graded Exercise Therapy (GET) should no…Continue readingPosition Statement: 2021 NICE Guideline Update