Dialogues for a Neglected Illness
Dialogues for a neglected illness is a new Wellcome Public Engagement Fund project led by Natalie Boulton and Josh Biggs, with involvement by a number of medical and scientific professionals. Dr Luis Nacul, Dr Eliana Lacerda and Caroline Kingdon from the Cure ME team at the London School of Hygiene and Tropical Medicine have assisted as clinical consultants and a number of biobank patients participated in the project.
This exciting new initiative consists of a collection of videos that deliver a comprehensive understanding of ME/CFS from the perspectives of medical professionals, exercise scientists, research professionals, patients and carers. The videos provide a vital resource and are already being hosted or linked by UK ME charities, as well as being included in medical education resources in both the UK and US.
“This series of videos is of superlative quality and has become a unique resource for many – from those affected by the illness, healthcare professionals and those with family members coping with ME/CFS. It demystifies the illness, makes it real to those with no connection to ME/CFS and is a testament to the work of the creators.”
ME Research UK
“A must see for physicians accepting the responsibility for these patients.”
Dr Fred Friedman
“…shining a light on both the widespread misinformation and the biological reality of ME/CFS,..to change the fundamental narrative about the disease that has derailed research and harmed patients for decades”
Mary Dimmock, Patient Advocate
Featured Practitioners and Scientists
- Dr Nigel Speight
- Dr William Weir
- Dr Luis Nacul
- Dr Nina Muirhead
- Mrs Caroline Kingdon
- Dr Charles Shepherd
- Professor Todd Davenport
- Dr Chris Snell
- Prof Mark VanNess
- Prof Jonathan Edwards
- Dr Eliana Lacerda
- Dr David Systrom
- David Tuller DrPH
- Prof Brian Hughes