Tag: PESE

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Compliance

Obligation to procure ME/CFS medical education

Educational materials defined by legally demonstrable scientific consensus are of material legal consequence versus liability for clinical outcomes, breaches of duty of care and relevant statutory and policy discrimination frameworks discussed in this document. This lack of medical education is documented empirically, by the UK National Institute of Health and Clinical Excellence and addressed by…Continue readingObligation to procure ME/CFS medical education

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Compliance

Knowledge-gap risk and audit trails (examples plus research-market inefficiencies)

Liability-generation from elevated probability of unlawful clinical and administrative judgement does not only stem from practitioners’ incorrect beliefs regarding disease aetiology (causes) and pathology (symptoms). Practitioners also generate further excess risk from their knowledge gap versus formal ME/CFS and related diagnostic criteria, which offer 1) rigour and ease of diagnosis and 2) risky diagnostic audit…Continue readingKnowledge-gap risk and audit trails (examples plus research-market inefficiencies)

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Compliance

Obligation to not mislead or evade diagnosis and to provide sufficient detail (FND, MUS, PPS, ‘dysregulation model’ and Long Covid examples)

Risk generation and unnecessary liability accumulation is commonly exacerbated by low and/or prejudicial standards of communication and/or record keeping in ME/CFS and other post-viral disease contexts. False record taking is commonly experienced in this field. Beyond the statutory contexts, the frequent frontline status quo regularly breaches a range of associated General Medical Council (GMC) and…Continue readingObligation to not mislead or evade diagnosis and to provide sufficient detail (FND, MUS, PPS, ‘dysregulation model’ and Long Covid examples)

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Compliance

Obligation to recognise ME/CFS patient housebound or carer status

House bound status Not accounting for the housebound or bed bound status of a patient when determining treatment or eligibility of a patient can add to or substantiate claims of liability, for resultant harm and financial loss, and/or for discrimination claims. It is extremely common that practitioners / their practices fall foul of these obligations,…Continue readingObligation to recognise ME/CFS patient housebound or carer status

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Compliance

Evaluating duties of care and unmanaged risk exposures

The numbers of people affected by ME/CFS are significant. There are roughly twice as many sufferers as either Crohn’s disease or Lupus, roughly one and half times as many sufferers as HIV/AIDS in the European Union, and similar numbers of sufferers as either multiple sclerosis and Parkinson’s disease. The prevalence rates are significantly greater where…Continue readingEvaluating duties of care and unmanaged risk exposures

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Compliance

Compromised indemnification, insurance cover nullification and liability for lost income

It is of acute risk management importance to note that any officialised obfuscation or encouragement of unlawful outcomes is not accompanied by implicit indemnification for discrimination, breaches of duties of care or other improper acts. This is in addition to reputational risk and accompanying freedom of information risk. Moreoever, lack/incompleteness of central NHS indemnification in…Continue readingCompromised indemnification, insurance cover nullification and liability for lost income

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News Opinion

DwME Honorary Fellow responds to RCP post

Photo by Karolina Grabowska on Pexels.com

Doctors with M.E. Honorary Fellow, Professor Derek Pheby, has responded to Dr. Nina Muirhead’s article for the Royal College of Physicians, following up her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for Long COVID patients. In particular, Dr. Muirhead discusses the recent surge…Continue readingDwME Honorary Fellow responds to RCP post

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News

Royal College of Physicians and DwME on the ME/CFS interest surge

Doctors with M.E. Director, Dr. Nina Muirhead, has written for the Royal College of Physicians in a follow up to her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for Long COVID patients. In particular, Dr. Muirhead discusses the recent surge in clinical interest…Continue readingRoyal College of Physicians and DwME on the ME/CFS interest surge

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News Patient Perspective Research Commentaries

Stigma and causal attribution – new research

Causal attributions and perceived stigma for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Doctors with M.E. Honorary Fellow, Professor Leonard Jason, continues his scholarship in the field of ME with his coauthorship of a newly published paper examining the role of stigma and its impact on health-related and social outcomes. In addition to ME’s extremely low…Continue readingStigma and causal attribution – new research

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News

Honorary Fellows and DwME leadership cited – medical profession moves towards belief and support

Doctors with M.E. Honorary Fellows and Leadership were quoted extensively in a recent article article about post-viral disease by Christina Frangou. Published in the Guardian, the article has been well received by experts in the field and is entitled“‘I felt betrayed’: how Covid research could help patients living with chronic fatigue syndrome.“ Research into long Covid is…Continue readingHonorary Fellows and DwME leadership cited – medical profession moves towards belief and support