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Education

International Consensus Primer for Medical Practitioners

(download via the Australian National Health and Medical Research Council) The International Consensus Primer (ICP) is a one-stop user-friendly reference that covers aetiology and pathophysiology of ME/CFS, together with guidance regarding personalised assessment, diagnosis, management and treatment for this complex illness. Included within the guide is a comprehensive clinical assessment and diagnostic worksheet, to enable…Continue readingInternational Consensus Primer for Medical Practitioners

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News Policy Positions

Rapid Response and Expert Comment: NICE Guideline Delay and Accommodation of Unlawfulness

We are very disappointed to hear of the ‘pause’ in publication of the NICE ME/CFS Guideline, already delayed in April. Following the hard work of the Guideline Development Group, we received news of the further delay of guideline publication with both dismay and profound concern for practitioners, their organisations and patients. Continued delay or deviation…Continue readingRapid Response and Expert Comment: NICE Guideline Delay and Accommodation of Unlawfulness

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Education News

Honorary Fellow on the new NICE Guideline for ME/CFS: Ten Questions Answered

Your questions regarding the new NICE Guideline announcement this week have been broken down and addressed by Doctors with M.E. Honorary Fellow, Professor Brian Hughes: 1. What’s going on? 2. How is the new guideline different to the old one? 3. Why is the new guideline being welcomed? 4. Why was the old guideline problematic?…Continue readingHonorary Fellow on the new NICE Guideline for ME/CFS: Ten Questions Answered

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News

Revisiting NICE Expert Testimony on trials in ME/CFS: Professor Jonathan Edwards

The following expert testimony was provided to the NICE ME/CFS Guidelines Committee by Professor Jonathan Edwards. It regards the difficulties of conducting trials in ME/CFS and the implications of not accounting for these. The difficulties of conducting intervention trials for the treatment of myalgic encephalomyelitis / chronic fatigue syndrome Summary testimony Therapeutic trials for ME/CFS…Continue readingRevisiting NICE Expert Testimony on trials in ME/CFS: Professor Jonathan Edwards

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News

Revisiting NICE Expert Testimony on ME/CFS education and training: Dr. Nina Muirhead

The following expert testimony was provided to the NICE ME/CFS Guidelines Committee by Doctors with M.E. Director, Dr. Nina Muirhead. It regards the problematic context of lacking information, education and support for health and social care professionals. Information, education and support for health and social care professionals providing care for people with ME/CFS. Summary testimony…Continue readingRevisiting NICE Expert Testimony on ME/CFS education and training: Dr. Nina Muirhead

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Education

Reference Text: ME/CFS/PVFS – An Exploration of the Key Clinical Issues

The “Purple Book” – a benchmark text for clinicians and practitioners This guide, co-authored by Doctors with M.E. Honorary Fellow Dr. Charles Shepherd and Consultant Neurologist Dr. Abhijit Chaudhuri, provides a comprehensive review of research, diagnosis, symptoms, and all aspects of management regarding ME/CFS/PVFS. It is an essential evidenced-based summary for all health professionals and…Continue readingReference Text: ME/CFS/PVFS – An Exploration of the Key Clinical Issues

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Education

Learning from a medic’s own journey

Doctor with M.E.: My Journey with “Chronic Fatigue Syndrome” Doctors with M.E. Founder Dr. K.N. Hng shares her story of learning and suffering from ME/CFS in this engaging, thought provoking and concise book. With humanity, wit, and links to a variety of resources, she brings her own journey as a medic to life. A must…Continue readingLearning from a medic’s own journey

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Education

Wellcome Trust Funded Video Education Project

Dialogues for a Neglected Illness Dialogues for a neglected illness is a new Wellcome Public Engagement Fund project led by Natalie Boulton and Josh Biggs, with involvement by a number of medical and scientific professionals. Dr Luis Nacul, Dr Eliana Lacerda and Caroline Kingdon from the Cure ME team at the London School of Hygiene…Continue readingWellcome Trust Funded Video Education Project

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Research Commentaries

Rethinking Care for ME/CFS Patients

Rethinking the Standard of Care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome This recent report by Friedberg et al. critically examines research claiming that Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET) are effective and safe treatments for ME/CFS. Analysis reveals unsubstantiated claims of recovery in non-blinded trials, which relied on subjective outcome measures, overly broad…Continue readingRethinking Care for ME/CFS Patients

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News

Honorary Fellow comments on the BMJ and NICE Guideline Committee Resignations

Is it just me, or is the BMJ’s take on those NICE guideline committee resignations maybe a little biased? The BMJ are reporting that four members of NICE’s guideline committee on ME/CFS have stood down. One is the medical advisor of the ME Association, who stated yesterday that he found it too difficult to combine…Continue readingHonorary Fellow comments on the BMJ and NICE Guideline Committee Resignations