Is it just me, or is the BMJ’s take on those NICE guideline committee resignations maybe a little biased? The BMJ are reporting that four members of NICE’s guideline committee on ME/CFS have stood down. One is the medical advisor of the ME Association, who stated yesterday that he found it too difficult to combine…Continue readingHonorary Fellow comments on the BMJ and NICE Guideline Committee Resignations
Tag: CFS
Monitoring treatment harm in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: A freedom-of-information study of National Health Service specialist centres in England Doctors with M.E. Honorary Fellows, Professor Brian Hughes and Tom Kindlon co-author important research investigating the reporting of treatment-related harm in ME/CFS following the use of graded exercise therapy (GET) and Cognitive Behavioural Therapy…Continue readingMonitoring Treatment Harm in the NHS
Genetic risk factors of ME/CFS: a critical review Doctors with M.E. Honorary Fellow, Professor Chris Ponting co-authors a review that highlights the need for large genome-wide association studies, such as the much anticipated DecodeME project. Such studies are required to identify possible genetic risk factors in ME/CFS, as this could improve our understanding and drive…Continue readingGenetic Risk Factors – A Review
Predictors for Developing Severe ME/CFS Following Mononucleosis New research, co-authored by Doctors with M.E. honorary fellow Professor Leonard Jason, attempts to identify why some patients develop severe ME/CFS following Infectious Mononucleosis (IM, Epstein Barr or Glandular Fever) by seeking out possible predisposing risk-factors. Additional gastrointestinal symptoms and abnormal immune markers prior to IM infection appear…Continue readingPredictors for Severe ME/CFS
Dysregulation of the Kennedy Pathway and Tricarboxylic Acid Cycle in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Doctors with M.E. Honorary Fellows, Dr. Lucinda Bateman, Professor Anthony Komaroff and Professor Ian Lipkin continue investigations into ME with co-authorship of newly published research that gives further support to findings of altered metabolomic profiles in ME/CFS patients. The…Continue readingDysregulation of Energy Metabolism
The law does not allow clinical judgement to be discriminatory or to breach duties of care – a normally uncontroversial statement with an unusual degree of unmanaged consequences for this field of disease. The law does not allow clinical judgement to be discriminatory or to breach duties of care – a normally uncontroversial statement with…Continue readingUnlawful clinical judgement (flu and covid vaccination examples)
Unmanaged post-viral disease liability, risk exposure and rising pandemic exposure (draft) Compliance obligations for professionals, operational and expertise risks in practice management, social care, occupational health intermediation, insurance underwriting, claims management and reinsurance Summary The role of habitualised unlawful clinical judgement and discrimination that leads to elevated probability of evidentiable malpractice is outlined. Obligations and…Continue readingCompliance, medico-legal considerations and enforceable obligations
Risk generation and unnecessary liability accumulation is commonly exacerbated by low and/or prejudicial standards of communication and/or record keeping in ME/CFS and other post-viral disease contexts. False record taking is commonly experienced in this field. Beyond the statutory contexts, the frequent frontline status quo regularly breaches a range of associated General Medical Council (GMC) and…Continue readingObligation to not mislead or evade diagnosis and to provide sufficient detail (FND, MUS, PPS, ‘dysregulation model’ and Long Covid examples)
Doctors with M.E. Honorary Fellow, Professor Derek Pheby, has responded to Dr. Nina Muirhead’s article for the Royal College of Physicians, following up her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for Long COVID patients. In particular, Dr. Muirhead discusses the recent surge…Continue readingDwME Honorary Fellow responds to RCP post
Doctors with M.E. Director, Dr. Nina Muirhead, has written for the Royal College of Physicians in a follow up to her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for Long COVID patients. In particular, Dr. Muirhead discusses the recent surge in clinical interest…Continue readingRoyal College of Physicians and DwME on the ME/CFS interest surge