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Compliance

Knowledge-gap risk and audit trails (examples plus research-market inefficiencies)

Liability-generation from elevated probability of unlawful clinical and administrative judgement does not only stem from practitioners’ incorrect beliefs regarding disease aetiology (causes) and pathology (symptoms). Practitioners also generate further excess risk from their knowledge gap versus formal ME/CFS and related diagnostic criteria, which offer 1) rigour and ease of diagnosis and 2) risky diagnostic audit…Continue readingKnowledge-gap risk and audit trails (examples plus research-market inefficiencies)

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Compliance

Compromised indemnification, insurance cover nullification and liability for lost income

It is of acute risk management importance to note that any officialised obfuscation or encouragement of unlawful outcomes is not accompanied by implicit indemnification for discrimination, breaches of duties of care or other improper acts. This is in addition to reputational risk and accompanying freedom of information risk. Moreoever, lack/incompleteness of central NHS indemnification in…Continue readingCompromised indemnification, insurance cover nullification and liability for lost income

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News

Cyber security alert for research, medical and allied communities working on ME or Long Covid

We strongly advise immediate and ongoing action to secure against live cyber security risks to members of the ME and Long Covid (PASC) research, medical and allied communities. We outline the minimum counter measures that we recommend. This is further to cyber security events that are outlined below, which have been reported to cyber crime…Continue readingCyber security alert for research, medical and allied communities working on ME or Long Covid

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News

DwME Honorary Fellow responds to RCP post

Doctors with M.E. Honorary Fellow, Professor Derek Pheby, has responded to Dr. Nina Muirhead’s article for the Royal College of Physicians, following up her 2019 article. This article comes within Royal College of Physicians initiatives to work with medical specialities to improve care for Long COVID patients. In particular, Dr. Muirhead discusses the recent surge…Continue readingDwME Honorary Fellow responds to RCP post

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News Policy Positions

DwME joins call for NICE to maintain scientific process

Further to our position statement on the 2021 NICE guideline update, Doctors with M.E. has joined the call for NICE to ensure that unconsulted changes are not injected, as these would avoid scrutiny by the scientific community. DwME considers the 2021 NICE guideline to be a watershed moment in the history of ME/CFS medical care…Continue readingDwME joins call for NICE to maintain scientific process

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News Research Commentaries

Stigma and causal attribution – new research

Causal attributions and perceived stigma for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Doctors with M.E. Honorary Fellow, Professor Leonard Jason, continues his scholarship in the field of ME with his coauthorship of a newly published paper examining the role of stigma and its impact on health-related and social outcomes. In addition to ME’s extremely low…Continue readingStigma and causal attribution – new research

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News

Honorary Fellows and DwME leadership cited – medical profession moves towards belief and support

Doctors with M.E. Honorary Fellows and Leadership were quoted extensively in a recent article article about post-viral disease by Christina Frangou. Published in the Guardian, the article has been well received by experts in the field and is entitled“‘I felt betrayed’: how Covid research could help patients living with chronic fatigue syndrome.“ Research into long Covid is…Continue readingHonorary Fellows and DwME leadership cited – medical profession moves towards belief and support

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News

Statement: Countess of Mar on Doctors with M.E.

In the 25 years that I have been working with people with ME the one wish that unites them all is that they should be listened to and believed. At last, the tide seems to be turning. Real money is being invested in biomedical research here in the UK and in the USA. This is…Continue readingStatement: Countess of Mar on Doctors with M.E.

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News Policy Positions

Position Statement: 2021 NICE Guideline Update

On the 10th of November 2020, the National Institute for Health and Care Excellence (NICE) published its draft updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). NICE has updated its 2007 recommendations on the use of psycho-behavioural treatments for ME/CFS, concluding that Graded Exercise Therapy (GET) should no…Continue readingPosition Statement: 2021 NICE Guideline Update

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News

Doctors with M.E. driving advancement in frontline care

“England’s largest GP super partnership, the Modality Partnership, places itself at the forefront of postviral disease management and care” This is a Doctors with M.E. news announcement of developments within Modality of public health importance and not a joint release with Modality England’s largest GP super partnership, the Modality Partnership, with nearly half a million…Continue readingDoctors with M.E. driving advancement in frontline care