Section 1.16 of the NICE ME/CFS Guideline requires that health and social care providers ensure that all staff delivering care to people with ME/CFS have an understanding of the patient experience. Doctors with M.E. asked the CFS/ME Research Collaborative Patient Advisory Group (CMRC PAG) what patients make of the new NICE guideline. They shared the…Continue readingGetting compliant with NICE guideline – the patient experience requirement
Tag: ME/CFS
When faced with a life changing, devastating chronic illness with no cure in a young person, doctors often don’t know what to do. Doctors with M.E. has produced guidance for GPs, but what do patients want? We asked patients to share examples of when doctors got it right. It is heartening to read this collection…Continue readingWhat does good practice look like? Patients chip in
Sumber asal diterbitkan dalam Bahasa Inggeris pada 15/1/2022. Diterjemahkan oleh / Translated byDr Hannah Nazri MBChB, BSc (Hons), MSc (Oxon)Doctors with M.E. Associate, clinician scientist, entrepreneur, and women’s rights & education advocate.Instagram | Twitter | LinkedIn | Blog Kandungan Gambaran keseluruhan Myalgic Encephalomyelitis (ME), juga dikenali sebagai Sindrom Kelesuan Kronik (Chronic Fatigue Syndrome – CFS),…Continue readingDari garis panduan kepada praktikal: Implikasi NICE ME/CFS buat doktor-doktor pakar perubatan keluarga (GP)
The Bateman Horne Center (BHC) is an international center of excellence dedicated to advancing the diagnosis and treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), and other related conditions. Its educational page on ME/CFS features BHC Medical Director and Doctors with M.E. Honorary Fellow Dr. Lucinda Bateman, with videos that take viewers through the…Continue readingBateman Horne Center: Educational Web Page on ME/CFS
It is widely acknowledged that barriers to good care for ME/CFS patients exist due to the lack of biomarker, disease specific treatments and poor medical education about this disease. There is also inherent cultural bias against invisible illness and illnesses affecting predominantly women. We sought the opinions of 656 volunteers who took the time and…Continue readingFacilitators to better ME Care
Publié initialement en anglais le 15/01/2022. Veuillez nous excuser, nous sommes conscients qu’il y a un problème de ponctuation. Nous faisons notre maximum pour le résoudre au plus vite. Traduit par Millions Missing France Contenu Vue d’ensemble L’encéphalomyélite myalgique (EM), également connue sous le nom de syndrome de fatigue chronique (SFC), est une maladie biologique…Continue readingMise en pratique : Ce que l’EM/SFC signifie pour les médecins généralistes, selon les préconisations du NICE
We are pleased to announce that the M.E. (Myalgic Encephalomyelitis) Educational Webinar Series organised by partner organisation Hope 4 ME & Fibro Northern Ireland and hosted by the Health and Social Care Clinical Education Centre of Northern Ireland is now available for public viewing. Featuring experts and speakers from Hope 4 ME & Fibro N.I.,…Continue readingMyalgic Encephalomyelitis: Northern Ireland Educational Webinar Series
Contents Overview Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a chronic, complex, multi-system biological illness with often devastating consequences. It affects all age groups including children and all social classes. About 75% of sufferers are female. It has a worse quality of life score than many other serious illnesses including cancer,…Continue readingPutting it into Practice: What NICE ME/CFS means for GPs
Festive wishes and reflections on 2021
2021 has been exciting and complicated in equal measure. After our successful launch, we enjoy ongoing successes, in behind the scenes policy fora, third party engagements and the visible frontline. We have a primed pipeline of current and future activities to look forward to. We thank our personnel who have taken on additional workloads and…Continue readingFestive wishes and reflections on 2021
Doctors are currently underprepared for care of patients with Myalgic Encephalomyelitis (ME/CFS) and medical education in this area is deficient. ME/CFS is a complex, chronic multi-system condition which affects at least 250,000 people in the UK, and frequently develops following a viral infection.(1)(2) Importantly, a growing number of people living with chronic disease following Covid-19…Continue readingME/CFS: The urgent need for improved generalist medical education